Archive for the ‘Health’ Category
I’m composing an email to my mother right now. We haven’t spoken in months.
She might be feeling guilty as she never called me on my birthday in March–so she feels she can’t talk to me at all. Well, gotta fix that up. Because I don’t give a bad goddamn fuck about my birthday! So, if this is the ONLY year in my life when it slipped by? Pfft.
She also needs to know I’m sick. How much I don’t know, possibly getting worse, being shipped off to a Urologist/Nephrologist (from now on I’m just going to use Nephrologist.) That I don’t know. I do know I’ll have to make up a new Category: Nephrology.
I haven’t gotten the third round of tests back–C&S (Culture and Sensitivity.) That’s an uber-drill down for microbial action. All my fevers, perhaps? Hang on to your thermometers there. The Ultrasounds? I don’t know those results either.
I should probably make a Serious Med Geek clarification about my first test re: the Creatinine. I had bloods AND urine done. This was no doubt the tip off as Creatinine is normally found in urine! I was so totally-out-of-it-sick to explain the problem!
What any decent physician should do, is quickly and easily look at both the Creatine in the urine and the blood. Compare and contrast the levels in both the urine and the plasma. This gives you a pretty good idea of the Kidney’s Glomerular Filtration Rate (GFR.) Mine apparently fell out of range.
Fevers. I think I should remove “You Give Me Fever” (in whatever form) from my iTunes Collection permanently.
Last night took me over the edge.
They’ve all been lasting since May 10. Around 102°F to maybe a degree higher. Ibuprophen does nothing except maybe down a notch for a few hours. And they DO make me delirious! In one simple way, I can feel like I’ve been shot up with loads of morphine!
10 days now. Last night. This is like a bad re-run of going into Isolation last August from what began as “a simple cough.” At least now I know what the hell’s going on.
Last night I FELT like I was in hell! My fever was so high I couldn’t even get a reading! At least 105°F as I can get that. I tried my underarm (like you do with a baby.) FUCK!!! STILL NOTHING!!!
This is dangerous. You could die. Along with everything else? IBUPROPHEN! 10,000mg! STAT!
I kept drifting in and out of sleep (better not have been consciousness!) but I thought I was awake the whole time. Finally, after a while, a reading: 104°F under my arm! Later, 103°F under my arm! Oh, thank god.
I’m still on fire but extreme, medical emergency averted for now. For now?
Holiday here today but keep sending massive emails to Sweetie GP. Will call tomorrow. My follow up appt. is not for a couple of weeks and I’ve heard nothing. On vacation? Her back up back up is lovely so hopefully she’ll take the driver’s seat? Maybe I really should be in hospital!
EXTREMELY PATHETIC CODA: While I was studying and dreaming away about medicine, gee, what would be my Specialty? Well, Neurology! Duh. But for some reason, I went mad over Kidneys! I have no idea why, but I thought Kidneys were SO cool! Now? Bad Karma?
I’m too tired to email my mom now. How on earth did I even write this?
I’m a wreck. I think we all can agree upon that. But the big questions are, am I becoming more of a wreck? If I’m becoming more of a wreck, just how much more? The only “answer” I do know is that it’s from head to toe.
I’ve mentioned losing, quitting that Clobazam cold turkey, for my Typical Absence Status Epilepticus–because it wasn’t available–a million times here! And now I’m starting to do the same with it breaking down my body! I’m back on the drug but sicker than I was before!!! That’s because quitting cold turkey fucked me up THAT MUCH!!!
So physically, I’m now losing some important things. Well, I don’t know. You tell me.
Immune System Weakening (hey, recall that little cough that threw me into Isolation in the ER last summer!)
We’ll now just toss in Endocrine because of all the rest of this.
However. this may now prove a bit difficult to write for you to understand. There is another problem that the TASE does not cause me. It has lasted for three days and is happening right now. It has just begun. I am in one of my TASE phases.
Never does the TASE give me an “identity” of sorts. I am a Cyborg that is in need of repair. I am working on it. That is repairing myself. This is Day 04. My work I perform during these periods last for 2-3 hours and then I stop and return to a non-Cyborg state.
Neither the Cyborg nor Dr. PA is a Cyberchondriac, but Dr. PA is also experiencing high fevers while not being sick. Dr. PA is not sure if this is a state of Delirium or Delusion as she has never experienced anything it. However, the temperatures were relayed to her GP by the Cyborg. Dr. PA cannot bear to read the email.
Dr. PA still retains lucid moments.
The importance of such a state of mind and the high fevers might have significance to Dr. PAs Kidney problems. A battery of tests have been ordered and were to be done extremely quickly. Dr. PA has kept track of the three urine samples and what has been on each Requisition to follow possible outcomes and problems. Such drastic changes as this, could indicate in greatest simplicity an infection. But if ignored, it could get worse.
An abdominal, pelvic and renal ultrasound have also been completed (last and latest step.) Although, the results are unknown as well as the third urine sample. It was for simply urine and C&S which is “Culture and Sensitivity.” That digs deeper into into microbial areas to see if any infectious problems exist.
The second urine sample indicated RBCs and WBCs in the urine. That presents a multitude of issues for Kidneys (and I should include Bladders in all of this as well.)
The first urine sample indicated Creatinine which has everything to do with Kidney excretion. Something is not being filtered out? Or filtered back in properly? If back in that may indicate the results of the second sample.
Dr. PA is also having issues with her Gastro problems again. She is now smaller. Within a range of 95-97lbs approximately. Eating does not help. Weight can not be maintained.
Unfortunately, working on anything to do with Dr. PAs computer may not be helping with my repairs. Perhaps later. It is another form of technology that may still measure my level of functioning. I continue to do things as “measures” of function but not exactly tests.
However, I must see one of Dr. PAs own Doctors today. I think that will actually qualify as a test and not a measurement. It is not until later. I might shutdown before it before such a test. Dr. PA would like that.
One last thing. Dr. PA does not have DID. Only Dissociative Amnesia under the collective family of DID Disorders.
An epilepsy first. Never have I experienced any recognizable injuries to my body, other than bonks on my bean.
Let’s start with my elbow. I don’t even remember when the injury happened, but it’s been weeks ago now! More than a month? As they say: if you can’t remember, it’s been a long time. I suppose I could look in my journal and find the last time I ended up on the floor with a tonic-clonic?
Direct impact. I can remember that. It hurt so goddamn much and compared to my other one, completely apparent it had suffered a real blow.
Well, I’ve fallen all over hitting so many hard surfaces when seizing! I just ignored it and figured it would heal on its own. I was still ignoring it when I went to see my GP recently (or it just never occurred to me as so much else was going on.) I never told her.
Skip the hard surfaces (literally.) Picture this. I’ll be lying down on my bed reading, sending someone an email on my mobile or something and…OUCH!!! Direct pressure on a mattress immediately makes my elbow extremely sore! So much, I have to stop entirely what I’m doing, and somehow try and stretch it out to rest it with no pressure on it.
Another picture this. Try to visualize how I can do that? I have to twist my arm around like some kind of spastic contortionist! It also has to remain straight as I have problems with flexion. Don’t bend it! I looked at it last night and I swear there was swelling after pain, pain, pain! There’s also a dark, red ring around the entire bone. I see.
But my foot? Oh, my elbow is nothing compared to my foot! And in tracing back by how bizarre it looked (even though seemingly innocuous at the time) I know what happened. A tonic-clonic in my sleep–which when I awoke, I couldn’t believe how bizarre its havoc looked!
My right foot has a massive bruise on it, nearly covering its entire top! Tell me readers. How on earth could I bruise the entire top of my foot and not remember it? How on earth could I even do it period???
That tonic-clonic. I must have really been going at it like crazy! Every single thing on my bed was all on the other side from where I was sleeping. Guess what else was else was on my bed within “kickable” distance? baby MacBook. Thrashing away at such a hard object might explain some things?
Some things. As I said, no big deal. The bruise hurt but all bruises hurt! A dormant, hidey-in-the-footy-injury? And it (or both) might be pretty serious? I don’t know. What I DO know is that my GP wants to see me tomorrow after hours when the office is closed!
I think that means ASAP. I’m just trying to get a ride with Accessible Transit because it’s such a late booking!!! My GP and Admin. (god I loooooooove them!) are holding the appt. If not tomorrow, then Wednesday.
Because now I can’t walk, you see. PAIN! Way more pain with flexion than my elbow. My ankle, even my toes. I’ve wrapped myself up in a tensor bandage and I’m trying to walk as gingerly as possible. With a sandal. Forget about a sock or shoe! I don’t think I’m at the point of needing two canes. Hopefully I won’t get there!
I have yet to figure out how I will keep my foot warm for going outside to travel. Tape a blanket around my foot and upper leg? That would probably work.
So, what brought out the dormant, hidey-in-the-footy-injury? *looks out window and sighs*
I went out to a concert on Saturday night! I haven’t dressed up in ages and I was thrilled to do it! I even wore heels!!!
Lots(?) of talk about suicide and me offing myself if “it gets too much?” What I recently said?
Fuck off PA. Didn’t you learn enough from the last time? What impact it had on so many people?
Well, I was strongly reminded from a friend overseas about my epilepsy, trying to sort out its nightmare, learning today that my Creatinine levels are now “a bit off.” Creatinine has everything to do with your kidneys. More labs, ultrasounds etc…
I’ll probably be okay. No, I will. No, maybe I won’t. But it’s still pretty ugly just thinking of it along with everything else.
NEVER in my life have I had a problem with Creatinine. Well, duh. I’ve never had problems with anything remotely to do with renal system. I’m now counting how many of my bodily systems are falling apart (or at least being affected.) And sorry to repeat myself folks, losing the Clobazam is why. Sweetie GP and I agreed, and started the list ages ago.
Well, so be it. But me committing suicide is NOT an option.
I made some Tweets earlier before my mobile died while out reading (escape my home while going mad!!!) I basically said such, and I need to make the most of my life–even if it is shortening. I need to get back to seeing all the beauty there is in it; whether I seek it out or it simply appears out of nowhere.
However, I still need to make up my will and directives. No, really. I do. Even if I died in some freak accident. Everyone has to have a will and their directives! Otherwise, your life as you KNEW it will be destroyed just as much as you’ve been destroyed.
Another thing is that we have amazing hospice care here. If I’m doing a slower version of the “Kansas City Shuffle” they’ll make me so comfortable (i.e. drug me up with such high degrees of opiates) I’ll just go to sleep. Peacefully.
And it will be peaceful for everyone else too. My slow dance will give everyone (including me) lots of notice so we can deal with it together.
Now? I just have to remember this and keep it in mind. Right at the forefront.
Sorry. Not exactly a bad pun. Freudian slip? Or just bad choice of wording.
Well, I’m still extremely disgusted about my behaviour from last night. However, it’s in the past. Get up, try and dust yourself off and climb back up on the mule again.
But had I received a certain document in the mail yesterday, rather than today? On top of everything else? There would have been ABSOLUTELY NO QUESTION PERIOD OF GETTING SO DISGUSTINGLY WASTED LAST NIGHT!!!
I knew it. I did. Just hearing a few, vague words from both Non-Arsey Neuro and Sweetie GP. I saw them within the last week or two. What I also saw was the two-and-half-page dictation from my consult with this “Specialist” (oh, he’s special, I won’t argue that!) for my ongoing epilepsy shit.
It’s really quite simple. You’ve all read it here.
1. Patient developed Typical Absence Status Epilepticus of catamenial origin.
2. Patient lost drug used to treat it, subsequently made everything to do with ALL of Patient’s epilepsy worse.
3. Patient has resumed drug but is still having convulsive seizures with a non-convulsive syndrome when she never had convulsive seizures with it from the start.
4. Patient is still gravely ill, cannot perform everyday functions, plus cannot leave her home for days.
What did I know (or was 99.58385% sure) he was going to say? I’m having Psychogenic Seizures. And he DID.
Although, I wasn’t prepared for some surprises! All wrapped up in such pretty paper with shiny ribbons and bows!
He misquoted me! He made me sound like I was a simpering, whimpering idiot! His writing about me even had little tinkle of a bell to hear.
Maybe I’m a little sensitive about all of this. It’s only been going on for years. It’s now at the point where its starting to actually effect and break down other systems of my body. It’s altered my life where I…loss! LOST! I WILL NEVER GET THINGS BACK!!!
I don’t hear any tinkling of bells. I hear him swinging a mallet against a gong, trying to smash it.
So what’s deal with all the tinkling and gonging? Psychogenic Seizures are real. But his tone. And he also mentioned figuring out things quickly, so as not to waste medical resources. I see. Or hear?
GONG! GONG! GONG!
Are you calling me a “malingerer?” Along with everything else you’ve tried to depict me as? Doing so as 3-year-old with broken crayons? Broken because you keep biting and chewing on them?
I understand he wants to do proper testing etc… but I can’t live like this. I won’t live like this. There may be a point when I really won’t live like this. If you catch my drift.
And if you think THAT drift is being a “malingerer?” Well, I actually told my mother straight to her face that I’d off myself. That yes, I would do it if things became so unbearable, I just couldn’t handle it anymore.
You could say that I was “malingering” myself all over my mother, but when I tried to kill myself, ended up on life support in the ICU, she was actually there every step of the way and after. Thus, my mother does not think I am a “malingerer.” She never displayed any emotion to me then.
When I told her about the future? An interesting, also minimal reaction.
She placed her hands flat together and put them to her mouth. She shook her head, ever so slightly. I could see some tears welling up in her eyes but she didn’t cry. I knew the tears were for both of us though. She wouldn’t want me to die, of course. But her tears also acknowledged that if my suffering did become too much, if that was what I had to do, she understood.
Nonetheless, I haven’t reached that point yet. If anything, I feel like committing homicide, not suicide.
Time to have a serious chat with Non-Arsey Neuro. This needs to get straightened out.
If I can type this right. If I can spell things right. Hey! Auto-Correct! If I could only… Stop. That’s not possible. The world is what it is and you cannot “correct” it.
Fuck. Music vs. Silence. I think music better. Silence only reinforces everything–and nothing–at the same time.
What to pick? Okay. ”Spleen And Ideal” by Dead Can Dance. Maybe my favourite except for another. But I like the haunting sounds of this one.
I’m turning it up. LOUD. LOUDER.
Wait. I have to listen to the first track before I continue. Probably the second too. And have a cigarette. Out of one pack when I bought two. The other “disappeared.”
That’s what happens when you’re a “Motherfucking Asshole.”
And after I listen to my music and hopefully write in a lucid manner, NO PITY. If you pity me, I am all the more worthless.
Triggers. They’re “Motherfucking Assholes” too. Even more so when you realize that they shouldn’t be. Something happens, you know the deal, so why should it send you into a downward spiral?
Well, I have no goddamn clue. Not to mention “so much stress” in my life.
Call it what you will, but I’m too stubborn to call it anything. That probably makes me a bigger “Motherfucking Asshole” than I already am.
I’ve been trying to quit drinking for a while now. Somehow, I can’t get past two weeks. It’s almost like a cruel joke. Any relationship I’ve had has never lasted past two and a half years. That’s been the cut off point. Today was 11 days.
I’m a “Motherfucking Asshole” for that issue alone. And more.
I’m sitting on my bed with baby MacBook, fully dressed and my shoes still on. I’ll probably not even bother to alter my clothing as such, to go to sleep.
If I can.
But I have a good drug arsenal. I’ll keep pushing to close my eyes for at least a bit. Even though I don’t want to see tomorrow. Or a lot of tomorrows right now.
They all just seem to be empty.
I just received one of those emails where it tells you to forward it to people and blah, blah, blah… My cousin sent it to me.
Immediately upon receipt of these emails in any form, I lose all bodily senses except my ability to hear. What do I hear? The eloquence and linguistic beauty of Monty Python: “…Spam!Spam!Spam!Spam!…” If you have no idea what I am talking about, Google it.
They always receive an automatic delete, except this one was a quiz. Sometimes I do the quizzes just to see what bullshit they contain and how fucking ridiculous they are. On occasion, at least I’ve been able to extract approximately 0.000000000mL of amusement from them.
Well, the good ol’ Typical Absence Status Epilepticus is REALLY doing in my brain right now. Giving me some nice Dr. Martens curbing but I still have all my teeth and I’m still alive too.
So I decided to do a “Reply All.” I wrote a retarded, reads-like-I’m-drinking-cat-piss-while-on-LSD speech. I thought it was humorous so I thought everyone else would as well!
One brain cell left and gmail.
I’ve finally decided to cut off all ties with anyone even remotely connected to non-bio dad’s side of the family. There are only two exceptions: my cousin who sent the email, and his mother who married into the family–divorced, married again etc.
I’d say they can all go to hell but there must be a more evil and disgusting place (even more evil and disgusting than them.) Some place that we humans do not know of. Yet. I say “yet” because it would become known to humans. As soon as the bastards and bitches ended up there!
One slight problem though. The whole goddamn bunch plus their never ending, tainted, inbred progeny would remain locked up inside FOREVER! Thus, we as humans still wouldn’t know it existed.
Long past “Forgive and Forget!” Now? “NEVER Forgive and NEVER Forget!”
Some people may say lots in disagreement to that. ”Oh, how terrible a thought.” ”That’s not right.” ” What an awful thing to say.”
“They’re only human!”
Thanks for your views on the matter but there’s far too much to say in retort! However, I will certainly say they do a wonderful job pretending they’re human!
gmail. I am SO thankful for it and now even grateful for it! The “Undo Send” Feature!
I hit “Send” and by some miracle(?) I realized I knew one of email addresses on the list. Nobody looked familiar before.
The one I saw was his father’s. Who actually played a part in physically abusing me when I was young. In fact, he was the “Ringleader” in getting a bunch of others to go along with it!
I hit “Undo” and looked anywhere, everywhere in a panic for what I had written! It was sitting as a Draft. gmail simply and automagically treated it as if I REALLY didn’t send it at all.
I’d say that’s one definition for the word “relief.”
A bit more relief? Post about my vaccination for Ebola RIGHT NOW! Before I try and sleep.
I have just realized something. Something that I think is quite important–for me at least.
It has dawned upon me mostly regarding my asinine behaviour on Twitter so many times, but also on my blog. However, I will give myself (and my blog) some leeway. My blog can serve as slightly more of a platform for me to rant about my life.
I hear all of your voices ringing in my ears, “Wait, PA. No! It’s fine to rant or say whatever you want on Twitter!”
In return, I now say, “Wait, everyone. Please hear me out. Let me illustrate how asinine it is talking about things, when you should remain silent!”
A few days ago, it was my birthday. DO NOT SAY HAPPY BIRTHDAY!!!
Birthdays are not always so good for me. This year’s was quite brutal and left me in a wee ball of PTSD for most of the day and the entire night. I did not want to speak to ANYONE about it. The simplest of many reasons, is that I did not wish to burst out into more tears than had already been shed.
I could have hopped onto Twitter and mentioned it, how upset I was, but WHY??? I already didn’t want to talk to a single soul! Mentioning it would have been absolutely counterintuitive and counterproductive!
And thus ends my “lesson” if you will.
Sometimes I should be quiet and just keep things to myself. Most definitely if they are extremely personal and incredibly painful. These types of issues, these ones that only I can work through to somehow try and get out of a labyrinth of hell!
Freely and openly talking about them has a strong capacity to make things worse. The best I can hope for is to talk to someone I deeply trust and can understand (a lot of hope in finding that!)
At least I don’t have to hope too hard regarding my extremely understanding Therapist. However, Therapists aren’t on call 24/7 to be there when you’re in crisis.
PA, over and out.
Hi. I’ve just been trying to “exercise” my brain but I think I rode the bike too far.
I was trying to go through A LOT of Twitter follows. I had to stop at this month. The emails went all the way back to December.
I was seeing stars not just from where I’d starred the actual emails, but from waaaayyyy beyond! I was also longing for one single button to click on, to just follow everybody!
Some of you weren’t there or dropped me or whatnot, so if you still want me, come knocking on my door.
Comments here? Uh, sorry there. Twitter was more of a robotic task. No writing. Except this?
However, I have been trying to write. Absurdly, so.
It’s too bad my brain is THIS screwed up by my insane epilepsy at this time–note stupid head injury making things even worse.
Maybe if it was a little less screwed, I could come up with some really funky stuff! Like craaaayyyyzzzzyyyy stuff. Oh. But with a lot of spelign mytsaeks.
I often think I am the reincarnation of Dostoyevsky, only in female form at times like this.
Except he produced so much of his greatest work while having his seizures (but unfortunately paid dearly in pain afterward.)
I never seem to be able to do shit.