Okay. I’m not sure what happened last night. Did we have another little spin around the Ultradian Cycling Dance Floor? Or did I throw some kind of tantrum like a toddler at the checkout counter when their parents refuse to buy them some candy? Well, I’m not really prone to tantrums and outbursts, that’s for sure. Too much stress got the better of me? Some wacky Bipolar mood shifty-shifty? I’m still feeling a little “spinny” today.
Rather a bit of a posting spree too. I pretty much expected no comments but that is fine. That can tend to happen when I (may) start to go off the deep end. I start to spew forth quite a bit on my blog. Not to worry–no hurt feelings. I think no one knows what on earth to say, really! Other than perhaps in their heads: ‘Oh, here we go! PA’s losing it again!’
Well, it’s a new day. Alright, after some sleep it is. Although, oddly (again, who knows what was going on) when I went outside to listen to the birds before retiring, one seemed to be chirping a little too loudly for my ears. My face got a little twitchy and I started to feel a bit altered. It didn’t last long but I can’t tell you exactly.
Did I have a Simple Partial Seizure? I can’t say for sure but I would only mention anything to neuro if I had another Complex Partial. Or if I started having a whole whack of Simple Partials. That may sound irresponsible but since I’m already on a whole bunch of Anticonvulsants, an isolated Simple Partial in my mind should not merit any major concern–especially if I’m not even sure I had one–which may be indicative that I did? Sounds a little counterintuitive, doesn’t it? However, since the Simple Partials have been managed for so long and the one Complex Partial is obviously more serious, that would be more of an issue? Again, unless I started Simple Partialing all over the place.
I can’t speak for everyone who has Epilepsy or a Seizure Disorder but from those that I have spoken to, they generally tend to handle it in a manner of their choosing. Sort of a comfort zone of their own. They know how it works for them as they have usually lived with it for a while.
A perfect example may be, should a person seize in public and an ambulance be called, if the person is not injured they may just simply want to go home and speak to their neuro about it. Whether they are taken to hospital is another matter. However, if you have a Tonic-clonic you can be pretty damn out of it when you’re Postictal and not be making any sense. You can even be combative so the paramedics may/will (?) just cart you away anyway. Still, the person won’t be admitted as it is a chronic condition and what is the point? They may just remain in hospital until they are a bit more “with it” and then be sent home…and follow up with their neuro as they see fit.
Actually, I had a version of basically Simple Partial Status Epilepticus (well, I believe it was as I rotted away in hospital and I was not dx’d at the time.) But boy does it sure fit the description! And in reading, you can have a Type I which is a non-progressive form. Oh, man! It was nuts.
It started like this and progressed in about…15 to 20 minutes or so: rapid eye blinking, facial twitching, all the way down to my mouth, mouth paralysis–therefore, tongue hanging out of mouth–drooling, due to the paralysis, motor aphasia although consciousness preserved, full on wicked neck and shoulder twitching and jerking–SO painful–and finally, jerking all the way down my right arm to my wrist/hand.
“Status” with any seizure means it’s basically prolonged–way longer than it should be and that is when you need to go to hospital. Especially if it’s a Complex Partial or a bloody Tonic-clonic. The latter? You could die. Even the former is not good either because your consciousness is lost with it as well as a Tonic-clonic. So major medical attention needed! And fast!
Mine lasted for HOURS. No, it was ridiculous. I had to try and write and communicate with my left hand as I am right handed and I swear, the jerks, twitches, spasms (basically mycolonus as it is called) were incredibly painful. I have never felt such bodily force like that in my life. It is amazing just how violent seizures can be and that was probably nothing compared to some other peoples’ out there.
Anyway, no work up. Just some simple neuro exercises and I was released. But exhausted and a bit loopy, again, being Postictal.
Sorry. Seizure chat diversion… I told you, I’m kind of out of it. Back to “life stuff.”
Ex-partner sent me a text a couple of hours after I fell asleep. I sent her one around midnight as I just needed someone to talk to. Again, she is out of the country on vacation. We went back and forth a bit. I ended it by saying roughly, “…you go back to your vacation and having fun. I’ll text you when the next crisis happens.”
Good lord.
“…my family and friends, are blowing in the wind…” Well, ex-partner is good but she is usually so busy with work.
Filmmaker’s been pretty good, actually. Normally she is so unreliable! Well, has been in the past! Still, she has two kids so that of course keeps her busy! We are still trying to get together but it shall happen.
Speaking of “getting together,” let’s put a wee “it” in the middle, shall we? No more fooling around! I know. How many times have I said that?! No, really. The clock is ticking.
I need to somehow find a balance between not pushing myself too hard so I don’t throw myself over edge and yet I can accomplish all I need to do! How well can all relate to that one, right? So, I’m working at it today. Trying to do all that I can. Trying to climb back up on the horse or a Shetland pony or some animal that will help me along.
I am seeing Merlin #1 tomorrow. Normally I am not all that keen to see him unless we really need to sort out my meds but no…I think I really need to talk to him. That is very rare for me as you all know (or if you don’t) I have great trouble with any kind of “talk therapy.” I feel like I’m slipping and I know I am struggling.