Archive for March 8th, 2012


I’m actually outside when I should be suffering horribly in bed from the Typical Absence Status Epileptics.  But I’m out.  Getting the free Wi-Fi at the cafe.  How is this possible? According to the date/s, I’m right in the thick of it.

My head is still a mess with cognitive impairment, concentration, all of that stuff.  My body isn’t so pretty either.  The nausea is continuing, ditto headaches, blah, blah…

But my moods.  I can handle feeling like a total space case (even though it’s really, really bad.)  I can deal with the bodily malfunctions.  But my moods.  They have caused me the most ugly, painful, words cannot describe, problems.

For the last few days, I seem to be pretty stable.  Almost just like that.  I went from 24hrs of sheer hell when I totally shit all over a fellow blogger (gotta love it when I do that!) We’re still working on repairing the damage. Then, the next day, it was like I was a totally different person.

There were (and are) still some “residual” mood problems.  I can get a bit teary at points.  That’s a clue to stay away from anything that might be potentially triggery.  Otherwise, no living hell (or dying in hell.)  No roller coaster of any mood or mind state you could ever imagine. All that you could imagine which would change within minutes–or less.

I’m only at approximately three weeks of the increase to 100mg of my Clobazam.  I was a bit concerned at first, as my sickness window began with only two and a half weeks.  Maybe a better trial with more of it in my system?

I have to wait and give it more time with the whole catamenial period/ovulation business.  That’s the problem.

Maybe it is at least doing something? Anything? Aspie PA does love her round numbers (100mg) so could this be enough to let me function again? Hey, even enough to move further forward?

No seizures to report yet either.  Well, maybe some ANS temperature dysregulation (you can get hot/cold/hot/cold…)  That’s nothing, though! Compared to the motor, full body, explosions?

I’m still really tired, though, so I’ll keep this brief.  Closing time, anyway.

And yes.  Don’t tell my meds! If we do and they are working, they might form some kind of mutiny, a rebellion, who knows! Let’s just let them keep doing whatever it is they’re doing.  I think that’s the best plan.