It took me a while to figure this out.
If you feel like something is wrong with your health, have a diagnosis where you need help because things are a bit unstable. What should you ALWAYS do?
Track things! Get a calendar, mark things down like a journal and monitor every and all changes! It doesn’t matter how small.
There were so many variables that took me so long. The largest being my head such a disaster. Head injuries can, to whatever degree, turn you into a wreck. I still have both retrograde and anterograde amnesia from one.
A few episodes happened when I was discharged, but I didn’t clue in to write down dates. They also just resolved with time. Not a lot of time either. Maybe two hours at most, and they were hardly as intense as before.
Everyone was still so focussed on a stroke at first, waiting for me to get my MRI, see its results… That was going to take a month or more
Recently, I had two other episodes. They were one day after the other. I certainly need to journal or track that!
The second one wouldn’t resolve after five hours, and was almost as bad as the one that sent me to hospital originally in July.
I finally broke down and went to hospital as I just couldn’t stand it anymore. Yes, I am a VERY stubborn patient. Don’t be like me!
I hadn’t thrown up like the first time, but guess how the Paramedics found me? Hunched down down on my knees with my head hung over the the toilet bowl.
They gave me this traveling vomit bag. It wasn’t completely a bag though. It had a cardboard “box” at the top. It was shaped like a Chinese Food Take Away Carton.
No offense to my Asian readers, here. I mean it. However, I couldn’t hold back from making a joke to one Paramedic and say, “This is what they give you when you have too much Chinese Food and it makes you sick.”
I was taken to a different hospital. Now, to treat the symptoms and “make me more comfortable” even though I was dying in pain. Are you kidding me?
Although, I actually passed out. Are you seriously kidding me?
IV Fluids. Standard. IV Toradol which is an anti-nauseant. I’ve had it before and it’s made me feel nice and floaty, but never knocked me out! Are you curiously kidding me?
Some other thing strung up and pumped into me. I can’t remember what it was so maybe that doped me. Are you illegally killing me?
Finally some Steroid. It was shot in liquid form, into my mouth via a syringe. Are you weirdly killing me?
It was for “Rebound Pain” over 72 hours. Okay. Now you are RIDICULOUSLY AND STUPIDLY KILLING ME!
This is the best hospital in our city. I want to go there ALL the time. It’s only that they didn’t know the history (now irrelevant) and how to treat me properly (now irrelevant.)
Although, I will be going back to an EYE CLINIC they have there. Yes, Clinic. Not just some Dr. Who Knows. I think even a Neuro Opthamologist. Awesome!
Does anyone out there remember my TASE? Typical Absence Status Epilepticus? If you don’t, you can search for the Horror Show on the rest of my Blog.
It was catamenial. That means, to do with your Menstrual Cycle and even days surrounding it. I was lucky enough to have ditto for Ovulation.
Well, now I’m having the same with migraines. I’m on my period now and those two one day after another? That second one where I had to go back to hospital?
Nothing has cleared up yet.
With this now in mind, I can EASILY track all the others from dates of my cycles.
This is a disaster. More than. Sweetie GP has been on vacation for the month of August. I have an appointment soon. She’ll probably agree with me:
“WE HAVE TO GET YOU TO YOUR NEW GYNECOLOGIST FOR THAT PARTIAL HYSTERECTOMY NOW!!!“
No kidding. I have to stop getting my period! Moreover, I won’t even bring my anemia and how bad that is into all of this.
Also, Non-Arsey Neuro is going to call me as he’s away for a bit now too. Stupid Summer Vacations! *laughing*
I will be suffering for a long time. None of this will be resolved anytime soon.
I have to try for some kind of stopgap. My Triptans can’t handle this. I’m going to ask him about Ergotamines. They might be VERY good for this in terms of how they work. The dose schedule, no contraindications or med interactions for me.
Another neat thing about some is they can ease menstrual flow. But I don’t know if that would happen for me at too high a dose.
There is a specific Ergot derivative to do this actually! It’s called “Ergometrine.” However, it’s not used to treat migraines
So, that’s that.
I think this needs to be handled ASAP. If these migraines are bad enough to give a stroke presentation, and they will continue to happen on a regular basis? What (else) might they be doing to my brain?
I already have so many comorbidities. Right now I’m living in a perpetual state of a very significant TBI. One that already affects so much of my daily functioning.
It also does bring out features of my other comorbidities now that I think of it. Absolutely.
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