For those who like to keep score, here are all of the meds that I have been on. They’ve invariably caused me some sort of wacky/ugly side effect(s) and/or some have not even bothered to work at all. As always, I welcome any questions and if you don’t recognize a med here, just ask!
Also, there have been changes over time. I’ve added them to the list and noted them at the end of this Page because some of them occurred after I started this blog.
– Diazepam/Valium (just a few days but what the hey)
– Liothyronine Sodium/Cytomel (I know this looks funny on a head med list but it was used as an adjunct to Effexor)
– Divalproex Sodium/Depakote (eh, three days inpatient but again, why not?)
– Bentahistine/Serc (widely prescribed for Meniere’s Disese to combat vertigo; in my case nausea from migraines)
– Methylphenidate (Extended Release)/Concerta
– Biphentin (pharmacologically identical to the above but used for ease of dosage change)
– Esomeprazole/Nexium (Proton Pump Inhibitor for GERD; not a psych med obviously)
– Domperidone/Motilium (Gastrointestinal med for migraine nausea)
– Diazepam/Valium (again, but now permanent)
– Quetiapine/Seroquel (Extended Release)
– Valproic Acid/Depakene (basically the same as the Depakote above)
So, I guess that pretty much covers every class except the tricyclics, the “old school” or “typical” APs (Antipsychotics) and the stimulants.
Strattera was a disaster. It’s kind of my own “fault” as I completely forgot that it’s basically an antidepressant–an NRI (norepinephrine reuptake inhibitor.) I can not even be in the same room with an AD (Antidepressant!) Okay, it’s not that bad but they make me go positively nuts.
In 13 days, Strattera reduced me to a quivering, mumbling, Mixed State, Ultradian Cycling, pile of rubble. Hey, at least I gave the drug 13 days. And the physical side effects were hell too. A gastronomic disaster and waking up at the crack of dawn just for the fun of it, basically.
Yep, developed in Sweden as an AD with terrible (or simply null?) results and now it’s an ADD med! I wonder if it actually helps ADD folks. No, really. I’m not being snarky. I do wonder. I guess there is some anecdotal evidence out there but I’ve had a bit of a hard time finding any studies.
But please, don’t get me wrong. I would never discourage someone from trying a med based solely upon my experience! That would be silly. We are all neurochemically diverse and unique. Speaking of being “all neurochemically diverse and unique” I’m going to start adding my med changes as we go along from here. It would be too much for the list above. Because I’m way too “neurochemically complicated.”
Edit: April 2007 have now started taking Lamotrigine/Lamictal (again) and Quetiapine/Seroquel
Edit: August 2007 have now started taking Methylphenidate/Concerta/Extended Release Ritalin
Edit: August 2007 have dropped the Zopiclone/Imovane as the Quetiapine/Seroquel is enough and tossing in a Hypnotic along with the Atypical AP seemed a bit overkill and unnecessary
Alright, so we need a bit of an update as per dosage. Topiramate/Topamax 200mg, Lamotrigine/Lamictal 150mg, Quetiapine/Seroquel 50mg, Methylphenidate/Concerta 36mg, Clobazam/Frisium (benzodiazepine used only as a seizure adjunct) 10mg, Rizatriptan/Maxalt (migraine med) prn
Gastrointestinal: Esomeprazole/Nexium (Proton Pump Inhibitor for GERD) 40mg, Palafer (Iron Supplement for Anaemia) 300mg
Edit: Have now gone off Palafer as I couldn’t stand it. My gastro loves me so he let me when I told him I refused to ingest one more little pill! We’re going to monitor for any future anaemia issues, I believe?
Edit: As of late December 2007, I have started taking 40mg of Biphentin which is exactly the same as Concerta, listed above. So far, it is only available in Canada. The reason for the switch was a more flexible titration schedule, basically
Edit: In February 2008, Domperidone/Motilium was added to my arsenal. It is a gastrointestinal med that can be used for assisting digestion but also for nausea. I will be taking it for the latter if/when I have migraines during the day while at work. There is no way I could take Gravol/Dimenhydrinate or I’d be passed out under my desk!
Edit: In April 2008, Seroquel increased to 100mg, Topamax increased to 300mg and Valium added at 5mg one to two tablets daily prn
Edit: In September 2008, Clobazam increased to 20mg and Lamictal increased to 200mg (for seizure management.)
Edit: In March 2009, someone asked me about my cocktail and I realized this was out of date. Let’s see if I can even remember everything: Topamax 300mg, Lamictal 200mg, Clobazam 20mg, Seroquel 150mg, Biphentin 40mg, Nexium 40mg, Maxalt (10-20mg prn) Valium (5-10mg prn.) The Domperidone doesn’t work at all–goodbye. Whew! I think I managed to capture them all!
Edit: In July 2009, changed from 150mg of Seroquel Immediate Release to 300mg of Seroquel XR (Extended Release.) This was because I had a bit of a “Brain Go Boom.” Also, in June 2009, went back to 36mg of Concerta due to stoopid guvmunt not covering Biphentin in their drug plan.
Edit: Had to immediately switch back to the regular routine of 150mg of Seroquel and drop the 300mg of the Seroquel XR after less than two weeks of taking it. My brain did not get along with it at all. That is a gross understatement.
Edit: In July 2010, had another “Brain Go Boom.” Lamictal increased to 250mg and Seroquel increased to 200mg. The Anticonvulsant is really the most important, as the “Brain Go Boom” was a really bad “Boom!” Well, aren’t they all? Not sure why the Seroquel was increased as it doesn’t carry over into the day to relieve anxiety. I only take it for sleep. Fine, I’ll do it.
Edit: Ah, minor change to the above, but increased Lamictal to 300mg in August 2010. I didn’t think the 250mg was quite doing the job, so I wanted a bit more “oomph.” Yes, that is a proper medical term.
Edit: In December 2010, 500mg of Depakene/Valproic Acid was added. Its intention? To try and eradicate the extreme ugliness, also referred to as: “Typical Absence Status Epilepticus.” It leaves me so disgustingly ill, I am housebound for the six days of each episode, that occur bi-monthly. It’s fun.
Edit: January 2011. Dropped the Depakene after two weeks! The world is a much safer place with me not taking that drug!
Edit: February 2011. After dropping the Depakene for the Typical Absence Status Epilepticus, the second choice was pursued. That was to increase my Clobazam/Frisium. Currently at 60mg and we seem to be on the right track. This med is actually used for Catamenial seizures/epilepsy. We just weren’t sure if it was enough to deal with such an extreme case.
Edit: October 2011. Increased Clobazam/Frisium to 80mg after I lost it. The drug suppliers couldn’t get it to any pharmacies. I had to quit it cold turkey with unbelievable results. I am writing this in December 2011 and am still sick. The 80mg is not working.
Edit: February 2012. Increased Clobazam/Frisium to 100mg from 80mg for the Typical Absence Status Epilepticus. The 80mg made the seizures go away, but only during the times when the TASE wasn’t occurring.
Edit: April 2012. Back on Biphentin for my ADD. It’s exactly the same as Concerta (extended release methylphenidate) but at my dose of 36mg of Concerta years ago, I needed more. Concerta is stupid as it stops an even titration at 36mg. Biphentin has even titrations of 10mg. It also has a different delivery system. Thus, I did better on 40mg of Biphentin.
Why did I have to stop my Biphentin? When I was laid off from my job and had to go on the government’s drug plan, it wasn’t covered. Even though it was the same as Concerta. Now, they’ve gotten their head’s out of their asses for at least this one, tiny thing.
Edit: End of June 2012. Extremely high dosages of my Topamax and Lamictal for me to play with. This was done so I could work on titrations of these meds I already take. The goal was to blast all the problems I was still having with the Typical Absence Status Epilepticus Status. Well, no seizures since the beginning of August 2012 (and still counting!) Mood problems still an issue.
EDIT: Ah! I just realized time for some med updates. A long time since the above. I’m still seizure free, it’s October 2015, and my moods are fine.
So what I’m taking at this point:
Morning – 200mg Topamax, 150mg Lamictal, 40mg Clobazam, 40mg Biphentin, 15mg Prevacid (for GERD.)
Divided Dose/Late Afternoon – 300mg Topamax, 150mg Lamictal (had been 200mg but 50mg was nuked.)
Night – 200mg Topamax, 150mg Lamictal, 40mg Clobazam, 200mg Seroquel, 15mg Prevacid.
Another long time for a med update! They’re all around the same time though. More or less.
March 2016 – Diagnosed with Continual Migraines. Started Propranolol 80mg. I chose 40mg morning and 40mg at my regular Divided Dose. No success.
Immediately after starting Propranolol because I was still whacko on its side effects – re-add 50mg of Lamictal for Menopausal Depression. Partial Success.
September 2016 – Increase of Biphentin from 40mg to 50mg. THANK GOD! I’VE BEEN BEGGING FOR YEARS! New Psychiatrist! Told him Stims can also act as ADs in some people. I’m not as depressed with this Menopause crap.
September 2016 – New Diagnosis: Chronic Migraine With Visual Aura. An aura can involve any of your senses, but visual is the most common by far. It was for me. I went completely blind in my right eye. I’m not making a joke, but it was quite something to experience what it feels like to be someone with no vision at all. My vision fully restored on its own in perhaps 15 minutes or a bit more.
September 2016 – That’s a long paragraph, so now on Gabapentin. 100mg increased weekly in same increments until 300mg.