Archive for the ‘Meds’ Category


I think I’ve used that before.  When things have gone sideways, pear shaped, become frozen, completely imploded, people have been stalking me, I’ve been stalking me and many other things.

Here’s a new one.  I’m now visually impaired to some degree, so forget using my Mac.  Even tiny mobile screens can become brutal. 

“Visually Impaired?” you ask.

Modus diagnosis operandi is Continual Migraines.  Shrapnel in my brain, from being admitted to hospital for a Stroke.  That was a year ago.  Except it wasn’t a Stroke.  It just sure as hell looked like one!

So it was probably a TIA then.  They can present almost exactly the same way.  The primary distinction is no damage or insults to the brain, whereas a Stroke generally shows something when you look at any/all parts of it.

Plus YOU can show a lot after a Stroke.

Well, my brain’s been insulted a lot.  By seizures, falls, people telling me I’m stupid, and yes, prior migraines.  However, this is a different braingame.  Too much.

Migraines can mimic Strokes and TIA’s so I probably didn’t have one of those either.  It was “The Migraine Heard Around the World.”

I’m not kidding.  I’ve been through a lot of funky medical experiences but this? It was beyond belief.  Surreal.  My head really did explode.  Okay, it didn’t but at the time…you get it.  And my eyes.  Psychedelic and black vision.

Try to imagine that.

Now, blurry, photophobia, pain cognitive impairment.  So, sunglasses, don’t push using my eyes, dimenhydrinate, new med (Beta-blocker Propranolol) and cane. 

Now back to my Blog after that fun stuff.

This whole Blog has turned to shit.  I honestly think this is the lowest of the low.  It’s never been as bad as this.

I don’t have the imagination to imagine conjuring a beginning to begin fixing it.  Much less time.  The first thing would be my Blogroll. 

How many old and dead Blogs are lined up there like ratty, teenage socks, hanging out to dry but they’ll always reek? No doubt more than I already know.

Then, replacements.  I’ve met so many great people with amazing Blogs out there.  However, due to “Technical Errors” (i.e. I’m a fucking idiot) I never filed them along with my others.

“Look and Feel?” Oh, bloody hell.  Just the thought of it makes me feel nauseous.  And since I’m sick I’m already nauseous!

The plopping of my current template into (better said ONTO) another template can make you want to heave, simply by looking at it.  Run away horrified too.

Eventually. Hopefully.

I haven’t shut everything thing down after so many easy (and difficult) situations.  That must mean something.  Perhaps the fact, that it’s actually not the lowest of low after all.

Yet?


I’m exhausted.  Both my head and my body need a serious break. 

Two new drugs.  Side effects.  One of the two pulled for several reasons.  The last drug to treat the problems.  The problems are still there.  The drug is new so who knows what will happen.  You’ve just started the drug, so you need more time to see if it works, and the side effects go away.

I DEFINITELY needed a break the day my uterine biopsies were done. My OB/GYN did them last week. 

Although, before I continue, this Post might be a bit much for the squeamish.  So consider yourself WARNED.

It was the second most painful procedure I’ve gone through in my entire life.  The first being the insertion of a urinary catheter while just lying on an examining table.  The Doctor put it in faster than completing the sentence:

“Okay, this is going to hurt a bit.”

I screamed at such massive decibels.  I still wonder to this day if I didn’t scare the hell out of all the other women in the waiting room.  Or perhaps, only dogs could hear me. 

I don’t remember if any women were in the waiting room.  I was like 18 tornados trying to find the exit doors when everything was done.  This was for ongoing UTI’s.

I have no clue what my OB/GYN was doing for her biopsies.  However, I can say she’s thorough? Holy shit.  Or holy blood?

I have a new Fibroid, the lining of my uterus is fuller, thicker etc.  Basically, a lot more blood and tissue for an egg to implant, but not good as my Fibroids are taking up space there too.

The biopsies, though? They’ll be benign.  THEY.

I could “feel” her almost slicing me up all over the place!!! Not like a simple “Punch Biopsy.”  Those are like a small poke.  You feel like you’ve just been vaccinated with a large needle.

After we were done, she told me quickly, “Move up the table.  Move up the table.  I don’t want to get any blood floor.” 

Like I said, she must be…thorough?

She told me to relax, take my time, I did a great job (she said that as we were doing it, I could take a break.)  It took me so long to actually move, then clean up, then try to get dressed…they actually sent a nurse to check on me.

BWAH-HAH-HAH!!!!!!!!

Ah, I love Medicine! I wonder what my hysterectomy will be like?

My OB/GYN is lovely though.  Only two things to note for the anaesthetist:

1. Not to be picky, but if you’re thinking about Propofol? It makes me sick.  Midazolam, please? 
Granted, those were only for less invasive things I’ve had done.  Still, no Propofol in your Alchemy.

2. DO NOT forget I’m on Propranolol.  I’d like to wake up after surgery.


Just mentioned on Twitter that I’ve got WP back up and running on my mobile. Hopefully more Posts soon?

I’m just starting Propranolol.  Been a month now and the side effects are kicking my ass off.  However, in a good way? Like I’m trippin’ out on significant levels of Opiates.

I’m still feeling pretty gonzo with my second dose.  I’m 40mg bid now. NOTE: Update Meds Page.

Later.  It can wait.  I took my second dose not long ago.

Why Propranolol? Based upon a fairly educated guess, I’m now dealing with chronic migraines.  It can be used for prevention.  Maybe kicked off from when I had every sign of a Stroke, and was chucked into hospital last summer.

Wow! This is a bit of a Post! Writing it when I feel like I’m in between being on Morphine and Heroin.

Not that I’ve done Heroin.  Am I spelling it correctly? Have I slept with a Heroine? Do I need one? Holy crap! Damn straight I do! *laughing*

No, I’ve just talked to people who have used it and what it was like for them; what they experienced.  Did I ever find out what some people can experience!

Utterly fascinating! I realized why so many people could become addicted to it.

I’ll also say it’s utterly fascinating why I’m getting stoned out my mind.  Well, it is to me because I really get off on Pharmacokinetics.

I’ve gone through every med I take and found the answer. Plus extra stuff which is just icing on the cake.

Super-awesome Post to write, but hells bells no, not now!  I can’t even handle this screen anymore.

Laters…


Someone might be checking me out now.  Looking at my blog to find out more about me.  I’m not sure.

But that’s okay.  In fact, it’s great! I want you to know me!

However, if you are looking at my Blog and checking me out, know that I am SO much more than these words.

If you are reading, I hope you see this.  If you took a look and don’t come back? I’ll be so mad of not thinking of this sooner!

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It took me a while to figure this out. 

If you feel like something is wrong with your health, have a diagnosis where you need help because things are a bit unstable.  What should you ALWAYS do?

Track things! Get a calendar, mark things down like a journal and monitor every and all changes! It doesn’t matter how small.

There were so many variables that took me so long.  The largest being my head such a disaster.  Head injuries can, to whatever degree, turn you into a wreck.  I still have both retrograde and anterograde amnesia from one.

A few episodes happened when I was discharged, but I didn’t clue in to write down dates.  They also just resolved with time.  Not a lot of time either.  Maybe two hours at most, and they were hardly as intense as before.

Everyone was still so focussed on a stroke at first, waiting for me to get my MRI, see its results…  That was going to take a month or more

Recently, I had two other episodes. They were one day after the other.  I certainly need to journal or track that!

The second one wouldn’t resolve after five hours, and was almost as bad as the one that sent me to hospital originally in July.

I finally broke down and went to hospital as I just couldn’t stand it anymore.  Yes, I am a VERY stubborn patient.  Don’t be like me!

I hadn’t thrown up like the first time, but guess how the Paramedics found me? Hunched down down on my knees with my head hung over the the toilet bowl. 

They gave me this traveling vomit bag.  It wasn’t completely a bag though.  It had a cardboard “box” at the top.  It was shaped like a Chinese Food Take Away Carton.

No offense to my Asian readers, here.  I mean it.  However, I couldn’t hold back from making a joke to one Paramedic and say, “This is what they give you when you have too much Chinese Food and it makes you sick.”

I was taken to a different hospital. Now, to treat the symptoms and “make me more comfortable” even though I was dying in pain.  Are you kidding me? 

Although, I actually passed out.  Are you seriously kidding me?

IV Fluids.  Standard.  IV Toradol which is an anti-nauseant.  I’ve had it before and it’s made me feel nice and floaty, but never knocked me out! Are you curiously kidding me?

Some other thing strung up and pumped into me.  I can’t remember what it was so maybe that doped me.  Are you illegally killing me?

Finally some Steroid. It was shot in liquid form, into my mouth via a syringe.  Are you weirdly killing me?

It was for “Rebound Pain” over 72 hours.  Okay.  Now you are RIDICULOUSLY AND STUPIDLY KILLING ME!

This is the best hospital in our city.  I want to go there ALL the time.  It’s only that they didn’t know the history (now irrelevant) and how to treat me properly (now irrelevant.)

Although, I will be going back to an EYE CLINIC they have there.  Yes, Clinic.  Not just some Dr. Who Knows.  I think even a Neuro Opthamologist.  Awesome!

Does anyone out there remember my TASE? Typical Absence Status Epilepticus? If you don’t, you can search for the Horror Show on the rest of my Blog.

It was catamenial.  That means, to do with your Menstrual Cycle and even days surrounding it.  I was lucky enough to have ditto for Ovulation.

Well, now I’m having the same with migraines.  I’m on my period now and those two one day after another? That second one where I had to go back to hospital?

Nothing has cleared up yet.

With this now in mind, I can EASILY track all the others from dates of my cycles.

This is a disaster.  More than.  Sweetie GP has been on vacation for the month of August.  I have an appointment soon.  She’ll probably agree with me:

WE HAVE TO GET YOU TO YOUR NEW GYNECOLOGIST FOR THAT PARTIAL HYSTERECTOMY NOW!!!

No kidding.  I have to stop getting my period! Moreover, I won’t even bring my anemia and how bad that is into all of this.

Also, Non-Arsey Neuro is going to call me as he’s away for a bit now too.  Stupid Summer Vacations! *laughing*

I will be suffering for a long time.  None of this will be resolved anytime soon.

I have to try for some kind of stopgap.  My Triptans can’t handle this.  I’m going to ask him about Ergotamines.  They might be VERY good for this in terms of how they work.  The dose schedule, no contraindications or med interactions for me.

Another neat thing about some is they can ease menstrual flow.  But I don’t know if that would happen for me at too high a dose.

There is a specific Ergot derivative to do this actually! It’s called “Ergometrine.”  However, it’s not used to treat migraines

So, that’s that. 

I think this needs to be handled ASAP.  If these migraines are bad enough to give a stroke presentation, and they will continue to happen on a regular basis? What (else) might they be doing to my brain?

I already have so many comorbidities.  Right now I’m living in a perpetual state of a very significant TBI. One that already affects so much of my daily functioning. 

It also does bring out features of my other comorbidities now that I think of it.  Absolutely.

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“If it looks like a…if it quacks or whatever sound…if it…”

How many people out there have had experience(s) with strokes? Have even had one themselves? I’m finally getting around to writing about this.  Wraparound sunglasses that wraparound my glasses too!

Most convenient and necessary.  I’ve also had to really increase the View on babyMacAir.  The letters looked like ants on a page.

Also, not for Photophobia.  To me, that seems rather odd.

The sunglasses and a fabric eyeshade that allows virtually no light, are used for use and recovery of too much use! Sometimes I don’t, or won’t know how much I’ve used my eyes the day before.  I’ll only find out by the degree of headache I have?

I’m getting one now as I woke up well before sunset when I’d rather be still sleeping or fine with being up now.  Although I’d rather keep the post-TBI (and definitely mine!) out of this Post.

So I was at home watching TV (or it was on) and looking at something on my mobile.  I wasn’t doing anything special and WHAM! I was seeing so many versions of everything, it was like I couldn’t see.  Quadruple Vision?

NOTE: Before you go any further into seizure thinking, hang on for the rest I have to tell you.  Also, I have never even been close to having a photogenic seizure.  Also again, if you don’t know, strokes can happen instantly to anyone–babies to the elderly.

FIN.

I am probably one of the hugest Emetephobes on the planet. Emetephobia means fear of throwing up.  Mine came from my mother, who cared only about anything in the house becoming soiled.

Heaven forbid you have a sick child who might barf–on a kitchen floor that wasn’t even carpeted! So fear was instilled.  Now I have to become violently ill to throw up.  Extremely sick or something wrong.  Well, the latter implies the former.

Sorry.  (Possibly) Stroke Me can’t think very well right now.

Then, I felt it coming.  Oh, god.  Oh, GOD!!!

How many of us have had THAT experience? *laughing*

Trying to run to the bathroom when you just know you’re going to toss your cookies! No bowls, buckets.  

No cheeks either.  It has to remain in your stomach.  If it comes up to fill your cheeks? You’ll have an unbelievable geyser all over the room–and be thankful your mother wasn’t mine.

So, after Crazy Vision I started to sweat.  A lot.  But that calmed down when I got really weak and tried to avoid a geyser.  I made it to the bathroom.

The weakness was not bilateral.  But “Stroke Bilateral Weakness” is a bunch hooey! Depending upon what’s going on and where, you can be weak all over!

I didn’t know how weak I was, what side, all of me, but I do know it was too far to crawl back to my bed to call 911 (or 999 in certain countries.)  People, my living is pretty small.

Nonetheless, bathroom closest to hallway to knock on neighbour’s door.  Crawl across hallway, throw up again.  This time some blood in it.  Not occult, although a fair sized chunk of either blood or tissue that was tan-like in colour.  That is for any Professionals out there?

The red is just a tear somewhere? Or part of…  Occult is bad, although that is for other organs–not specifically my brain.  If it were, only an embolism would be capable of destroying things all over.  That said, I could or would be dead right now? This happened on July 21, 2005

Okay, on with the rest of the show.

My voice and speaking ability.  Total mess! The woman could hardly understand me to figure out to call 911.  The Paramedics couldn’t understand me because they asked if she lived in my place.  No. But she’s trying to find what they needed.

Mumbly, mumbly, mumbly! How many hours until I could speak again? I have no clue.  Also, post-TBI but have no memory of dealing with Doctor in ER.  Have the notes and I laughed out loud at how I was acting and what I was saying.

I couldn’t even tell him what brought me there! I was going on about prior medical problems that were totally irrelevant.  I clearly had no cognitive capacity to engage in conversation about anything! And again, what brought me there!

I had to wait for a bed on the medical floor.  I don’t know how long.

Oh, yes.  The worst of it all is I wanted to rip out everything from my eye sockets from the pain! I was in so much PAIN!!! Rip every piece of tissue out of those sockets until there are only black holes left!!!

This is getting pretty long.  I’ll save the hospital stuff.  I’m getting really tired too.  I need to rest.  All I do, but I finally have my MRI Scheduled! I hope they find something.

Not to sound whiny but it’s not pleasant.  Housebound, alone, feeling sick…yeah, okay.  Whatever.  A lot of others have it a lot worse and they’re really happy.  I should shut my yap!

Tell me what you think my readers.  I won’t tell you the number of other people that have told me what.

CODA: 20+ years of First Aid and CPR Training might have really helped me here.  If I didn’t know any better, I could have just slept it off, see how I feel in the morning.  How about you feel nothing because you’re dead.  Whether you had a stroke or not.

Everyone, if you EVER feel sick or off and you don’t know what it is. But something feels wrong.  Listen to your body and not your head!

And go straight to the ER.

FIN.


Which is a good thing and a bad thing.  It’s easier to type now (still slowly) but I can use WordPress better.  Terrible on my phone.

However, all the new people I Followed on Twitter? I have to go find their Blogs and put them in my file with everyone else’s. That will be a lot of work.

Then we need to talk about this whole, “Me Having a Stroke” or whatever etc. issues.

And the bright light of a computer.  Even set on the lowest possible end for brightness? It’s still making my eyes, and radiating, ocular area of my head, scream like you could hear from this Post–what country where you live is irrelevant.  My screaming will be equally loud across the globe.

Wait.

Dammit! I should have used all of that FOR writing the Post about the stroke crap! Oh, well.

When you have a head injury, no matter what type, you’re a little off you’re game.  Or sometimes A LOT.

Which is where I am now.  I sometimes don’t know if I’ve used my eyes too much the day before.  That’s when I wake up wanting to scratch my eyeballs out of my head (but we’ll get to that later.  It’s not so bad now.

I forgot I bought a pair of wraparound sunglasses that fit over my glasses so a very good solution when I need to do things requiring light.  Then, long periods of the black blindfold just eyes closed.

I need some tea now.  Wake up a bit and put the groovy shades on because it’s a lovely summer day.  Too bad I can’t enjoy it! Brief and very safe walking with the cane.  Maybe I could sit outside on my patio but I always try to read!

That is MASSIVE eye work! Even “looking around?” And it’s not photophobia.  That’s the weird thing.  Dark, and protective vision for pain, but not for brightness.

There’s something wrong with my head.  I’ve even got it on paper when I was admitted that an MRI was to be done for a stroke.

Okay, in a really messed up way, you know some of what’s going on? Next, I’ll try and run you through everything that happened.  It’s Classic Stroke Behaviour.  Or something like it.

See ya.


How can you tell your ADD is getting worse when you already have it!

How can you tell your ADD is COMPLETELY spinning out of control when you can’t tell it’s getting worse because you already have it and it’s even worse now because it’s already spinning out of control and you also can’t tell because it makes you write run on sentences just like you would speak but you wouldn’t know you’re speaking that way because you can’t tell your ADD is spinning so out of control and taking you with it but you don’t know that!

I’d normally start panting, gasping for air, but I actually found a little gem from all of that.  MY ADD IS SPINNING OUT OF CONTROL AND TAKING MY WHOLE LIFE WITH IT!!!

Not a lie: at its peak, I’ll be doing something for 10 minutes, then I’ll go off and do something else for 10 minutes, then I might return to the first thing I was doing for another 10 minutes or I’ll wander off and do something else for 10 minutes, after that, 10 minutes later…

Sorry for another run on.  I was too busy flitting around every 10 minutes doing who knows what, and I couldn’t remember where I left off writing this Post.

I need to build one of those “Cast of Characters” Pages.  There are a lot of them floating around here. 

For old and new readers alike, it would probably simplify things.  And everyone might get some giggles.  There was one I was really stuck on (and kind of still am) for a name.  I just don’t want it to be verboten in the trigger area.  I guess I could say that.

Was that too bad for an ADD tangent? At least a piece or two is relevant there.

I had to stop seeing Merlin #1 so I was referred to hopefully, a Merlin #3.  I think Dr. Asshole had already started me on Concerta at that time.

Yes.  He did.

Merlin #2 and I decided I needed a titration of my 36mg of Concerta as I was still having problems.  I think this was back when titrations for Concerta were extremely ridiculous.

As in, “Big Pharma, you are so insane.  YOU need the medication more than you provide for the sick! YOU ARE SICK!!! I hate you from head to toe! But I can’t.  I need your medication.”

People, that’s one of my biggest love/hate relationships with Big Pharma.

Continuing.  Back then, I think you went from 36mg to 57mg.  Wot??? They’ve evened it out now, but I’m tiny! Even though I had NO side effects, I did agree that was too much.

So, we switched to Biphentin.  Some of you might not know this ADD medication.  Certainly in the U.S. because a very good website doesn’t even list it.  And, it’s a U.S. based depository.

However, for the drugs that are listed, it does give you a decent bit of pharmacology and chemistry as to how they work.  If you can grasp that, it’s a pretty good bonus for a patient driven site.

It doesn’t go as far as listing DINs (Drug Identification Numbers.)  Those are more for Pharmacists, Physicians and Medical Coverage (when required.) 

A DIN you might say? Oh, I laughed so much when I first looked at the depository for all of those! Every pill and every dose for a drug currently in existence has a separate one.  A lot of numbers.

Back to Concerta and my Biphentin.  Biphentin is Concerta.  Pharmacologically, few tweaks, different method of delivery, but the main point for me was an even 10mg titration up to 80mg.

We might have a Merlin #3 entering the picture.  I’ve had several discussions with Merlin #1 (hopefully I can back to him as my primary) and he has another colleague who will increase my Biphentin.

I think we’re good to go.

NOTE: on my blog I offer and direct readers to sites that I do not endorse. I have been speaking of one heavily here re: medical information forpublishede.  I will not mention it here should this Post end up being published elsewhere.  Please email me if you would like more information.


Sorry.  Not a very catchy title.  Blame the migraine (and Maxalt – my triptan of choice.)  I’m actually turning my mobile at a weird angle for the photophobia.

OMG.  What am I doing??? I want to write something because I’m ticked off, but I’m waiting for the Migraine Murderous Reaper to come knocking on my door–not some courier with a belated birthday gift.

I’ll get back to this.  Post-Postdrome.

Sorry, but thanks?


I kept holding my little AA Chip I got today after my first Meeting.  No.  I kept holding it ALL DAY.

And crying.  And crying.  And crying.  And crying.

And smoking.  And smoking.  And smoking.  And smoking.

We’ll deal with that addiction later.  Although, Sweetie GP has a Clinic to help with that. 

Holy, crap! Multiple Doctors working in the same office and they have Clinics to help you with everything and they’re all in the same office.

The building is also a high rise with other occupants.  Quite.

This is going to be rambly as all get out.  Or get up? Ouch.

I took my meds pretty early hoping to pass out like a bomb.  Huh? Passing out wouldn’t sound like a bomb would it? I don’t know.  I pass out quietly.

Slow.  No? I broke my role of only two Valium a day to three to kick my sleep meds in the arse if they don’t kick in after a long time.

It’s okay that I do this though, kids.  No abuse of my meds.  All my Doctors know I do this.

Finally! But very fitful.  Then a few hours later? 0300hrs? Oh, man!

Had to go to the bathroom but MIGRAINE!!! Gulped my Maxalt but after that, I knew that going back to sleep would be impossible.

I’m so gone.  I don’t think I can write anymore.  Proofing this will be impossible.  I think you guys will get it though.

When my Insomnia gets beyond control, I find I can usually (or possibly?) get some winks before sunrise.  Maybe I’ll try that.