Archive for the ‘Migraines’ Category


I think I’ve used that before.  When things have gone sideways, pear shaped, become frozen, completely imploded, people have been stalking me, I’ve been stalking me and many other things.

Here’s a new one.  I’m now visually impaired to some degree, so forget using my Mac.  Even tiny mobile screens can become brutal. 

“Visually Impaired?” you ask.

Modus diagnosis operandi is Continual Migraines.  Shrapnel in my brain, from being admitted to hospital for a Stroke.  That was a year ago.  Except it wasn’t a Stroke.  It just sure as hell looked like one!

So it was probably a TIA then.  They can present almost exactly the same way.  The primary distinction is no damage or insults to the brain, whereas a Stroke generally shows something when you look at any/all parts of it.

Plus YOU can show a lot after a Stroke.

Well, my brain’s been insulted a lot.  By seizures, falls, people telling me I’m stupid, and yes, prior migraines.  However, this is a different braingame.  Too much.

Migraines can mimic Strokes and TIA’s so I probably didn’t have one of those either.  It was “The Migraine Heard Around the World.”

I’m not kidding.  I’ve been through a lot of funky medical experiences but this? It was beyond belief.  Surreal.  My head really did explode.  Okay, it didn’t but at the time…you get it.  And my eyes.  Psychedelic and black vision.

Try to imagine that.

Now, blurry, photophobia, pain cognitive impairment.  So, sunglasses, don’t push using my eyes, dimenhydrinate, new med (Beta-blocker Propranolol) and cane. 

Now back to my Blog after that fun stuff.

This whole Blog has turned to shit.  I honestly think this is the lowest of the low.  It’s never been as bad as this.

I don’t have the imagination to imagine conjuring a beginning to begin fixing it.  Much less time.  The first thing would be my Blogroll. 

How many old and dead Blogs are lined up there like ratty, teenage socks, hanging out to dry but they’ll always reek? No doubt more than I already know.

Then, replacements.  I’ve met so many great people with amazing Blogs out there.  However, due to “Technical Errors” (i.e. I’m a fucking idiot) I never filed them along with my others.

“Look and Feel?” Oh, bloody hell.  Just the thought of it makes me feel nauseous.  And since I’m sick I’m already nauseous!

The plopping of my current template into (better said ONTO) another template can make you want to heave, simply by looking at it.  Run away horrified too.

Eventually. Hopefully.

I haven’t shut everything thing down after so many easy (and difficult) situations.  That must mean something.  Perhaps the fact, that it’s actually not the lowest of low after all.

Yet?

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Just mentioned on Twitter that I’ve got WP back up and running on my mobile. Hopefully more Posts soon?

I’m just starting Propranolol.  Been a month now and the side effects are kicking my ass off.  However, in a good way? Like I’m trippin’ out on significant levels of Opiates.

I’m still feeling pretty gonzo with my second dose.  I’m 40mg bid now. NOTE: Update Meds Page.

Later.  It can wait.  I took my second dose not long ago.

Why Propranolol? Based upon a fairly educated guess, I’m now dealing with chronic migraines.  It can be used for prevention.  Maybe kicked off from when I had every sign of a Stroke, and was chucked into hospital last summer.

Wow! This is a bit of a Post! Writing it when I feel like I’m in between being on Morphine and Heroin.

Not that I’ve done Heroin.  Am I spelling it correctly? Have I slept with a Heroine? Do I need one? Holy crap! Damn straight I do! *laughing*

No, I’ve just talked to people who have used it and what it was like for them; what they experienced.  Did I ever find out what some people can experience!

Utterly fascinating! I realized why so many people could become addicted to it.

I’ll also say it’s utterly fascinating why I’m getting stoned out my mind.  Well, it is to me because I really get off on Pharmacokinetics.

I’ve gone through every med I take and found the answer. Plus extra stuff which is just icing on the cake.

Super-awesome Post to write, but hells bells no, not now!  I can’t even handle this screen anymore.

Laters…


I mentioned on Twitter that it might, might be time for me to hang up my Blogging Hat.  Or, to say stop my Blogging Hands.  That would be more appropriate.

It’s not an ongoing, forever-we-experience, Blogging Crisis.  It’s not Writer’s Block.  I could think of many things to write about.

Things have changed.  Some that are easy(ier) to explain, some I don’t know if I can, but I’ll try.  Some I don’t even know if I can explain to me!

My Blog has been up for nine years.  I don’t know how long any measurement that means.  In terms of living, averages of any kind, but that’s pretty irrelevant, I think.

I mentioned the word, “living.”

Are Blogs really living entities? I believe the answer is a very firm, no.  We MAKE them living entities.

I made an analogy on Twitter as well, regarding the “feelings” between both my Blog and me, as a person.  I said, “I feel like I have phantom limb pain.”

It’s true.  Something has been severed.  The “living entity” I have created, that which was so connected to me…  It’s not anymore…  But to what degree, and even what part of my body, I do not know…yet.

Despite still writing a bit more, I have been tremendously unhappy with my Blog.  The beginning of things being severed? There were times I couldn’t even look at it.  Now, things seem so, terribly disjointed and I can’t fix them.

I definitely don’t expect you to understand that last sentence!

Does reading my Blog make me cry? *laughing* Of course not! It’s my life!

Thinking about my life might make me cry, but my entire life isn’t on my Blog.

The only times I’ve cried reading my Blog was years ago.  I would receive these Comments from utter strangers.  They would pour their hearts out to me and tell me I literally saved their lives.

I would sit and bawl my eyes out.  Why me? Who am I? I didn’t say anything? It took a LONG time to respond to people like that! But they were few.  I’m not being egotistical.

I write a lot about having no life.  Well, I do.  We all do.  Perhaps not as we’d always like it, but you can’t escape the fact.

How many hours have I Blogged, read other Blogs, spent time on Twitter when that came along later.  How about all day and all night?

At the time it felt just fine.  Really? Not so really. 

That’s not healthy.  I mean, for me it isn’t.  It’s an unhealthy escape.  Too easy to muck about when I need to focus on getting myself at least somewhat together.  Also, that “somewhat” is just a start.

How long has it been since I really got into my own writing? I mean really got into it? I have SO many unfinished projects, I haven’t sent any Submissions to anyone in ages. *sighs*

Am I done? I sure feel done.  This Post has been exhausting to write.  Difficult, too.  Don’t cry, PA!

*teardrops*

But for now, I’m still here.  I haven’t made a final decision. 

Maybe Dr. PA can perform some surgery on both sides; to mend herself and reattach what she brought to life and into this world.


Someone might be checking me out now.  Looking at my blog to find out more about me.  I’m not sure.

But that’s okay.  In fact, it’s great! I want you to know me!

However, if you are looking at my Blog and checking me out, know that I am SO much more than these words.

If you are reading, I hope you see this.  If you took a look and don’t come back? I’ll be so mad of not thinking of this sooner!

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I was talking about Bedbug Treatment earlier.  They run like crazy through our vents so if one person can get them, in can be a bloody Five Alarm Pesticide Fire for the rest of us.

Due to this “New and Improved” (I love that oxyMORON) the MORONS around here are making us wash our entire living spaces.  And I don’t mean that annoying Febreeze™ commercial.  I mean it for real.

It’s even more fun because I live in a Bachelor.  Not at least a one bedroom.

Anything you can imagine putting in a washer and dryer to clean, we (I) have to do it.  Alright, a wee dose of sarcasm, BUT NOT THAT WEE!

Afterward, secure tightly in a garbage bag for Pest Control Treatment.  Which I find yet another thing oxyMORONIC.

I doesn’t hurt my other valuables that I would NEVER put in a washer and dryer.  Like my BOSE WAVE III.  So, if they’re worried about Bedbugs in every single stitch of our clothes, linens, every piece of fabric that touches us, why do we have to launder it over and over?

So here’s what I want to know. 

It doesn’t affect stuff on bedside tables, art on walls, books, CDs and DVDs, Televisions, dishes that might be out because you didn’t get a chance to wash them all yet, food in cupboards, misc. things on shelves, blinds, curtains, any kitchen appliances…

Well, why the hell don’t you just leave all the fabric stuff out in the open and have it all sprayed too!

Harrumph.

Oh, and on Tuesday they’re treating my place for ants and mice.  However, we have “special ants.” They’re called Pharaoh Ants.  Very easy to deal with.

They like water, so just keep any damp areas wiped dry.  Then they go away. 

Although, they can be Techie Ants too.  I’ve found them skirting around my Laptop screen when using it.  Maybe they were just curious as to what I was writing.  Either way, no harm, no foul.  They didn’t cause any damage.

Back to the Bedbugs.  I believe my Second Treatment will be on Thursday.  I couldn’t even manage to do all Preparations for the first.

You see, under my “regular” health conditions, I need to take a guy I know to go grocery shopping with me.  I can’t lift the heavy bags!

I also have him help me with laundry because it gets pretty bad going up and down, up and down… 

A bag of clothes slung over my shoulder with one hand.  The other, holding my cane and a jug of Detergent.

I’m not complaining here.  Know that.  Just the facts of the case.  What I will complain about is that our Laundry Room has five Washers and 10 Dryers.

Now, we have the above and a head injury so unbelievable…well, it is quite unbelievable so try to imagine it when washing my apartment with it!

I get migraines that appear like I’m having strokes.  Neat, huh?

A stroke.  Picture that.  Even on it’s own. 

Granted, sometimes they are not as bad, and SO symptomatic; waving a huge flag with every sign listed.  That was when it started and I first went to hospital.  In my Chart, they Rubber Stamped: STROKE PATIENT!

However, after Discharge I did have another that sent me back to hospital.  Thus, this “thing” is highly unpredictable.  And painful.  And weakening.  And EXTREMELY DANGEROUS.

I lose a significant (more than?) degree of both gross and fine motor skills.  PA fall down go BOOM.  In fact, I almost did doing the damn laundry the FIRST time for this!

Wait.  I did fall a bit.  I remember because I immediately wrapped and curled my arms and hands around my head.  To protect it if I went all the way down.  Like my head isn’t (severely!) enough?

I’m also visually impaired so wraparound sunglasses mandatory.  Really sick makes being bedridden mandatory.  So can my awful TBI Sleep.

TBI is an acronym for Traumatic Brain Injury.  The term is generally used for a head injury that’s more than a bump on the bean that you’ll get.  One that won’t significantly affect you, and will heal quickly.  Like a mild Concussion.

However, a more serious Concussion that takes too long to heal, acquires problems, and possible chances something might not heal? Post-Concussion Syndrome? That would then be shifted to a TBI.

All head injuries can make you SO tired and want to sleep.  That can be part of the healing process.  But when stuck with massive, permanent, can be treated or not, your degrees of sleep can be astonishing.

I’m minimum 12hrs a day, but sometimes more.  On some days I would kill for more.  Caffeine or not.  Like today.

The information and guidelines to prepare for this Bedbug Treatment? It’s more like something actually written by the Gestapo.  It makes me wonder if anyone without any challenges could do it all?

Moreover, it’s given to you four days in advance.  Moreover, moreover, I live in a Co-Op.  The By-Laws state, if you need help for any health conditions, you are to obtain a Doctor’s Letter stating why you need help–and what your issues are.

FOUR DAYS??? I got mine for the First Treatment on a Friday.  Thanks for that.  So I was at least ready for the Second.  This was charming.

Despite my letter being Crystal Clear, I was told I had to explain exactly what I needed help with.  In Detail.  Then, the Co-Op would see what they could do.  They could only do so much.

I began citing the portion of the By-Laws regarding all of this, only to be interrupted, that I had to read them, “properly.”

I have a wonderful relationship with our Manager.  We talk, we joke, he knows I know the By-Laws back to front.  I do things to make this place run a lot easier for him.

Why is he not doing the same?

My emails to him now. *laughing*  I’m trying to “maintain” a Business Tone.  Have I reached the Antagonistic Tone yet? I don’t mean to sound that way.  But it’s called: Documentation.

I found a little cart I have that I thought was broken.  One of those metal, grid-like ones you can use for shopping.  It turns out it’s not broken at all.

I could use it for laundry.  Still, there is absolutely NO WAY I can do what is required (again, like I have a stroke, and only having a few days.)

I think I could do my laundry with my little cart.  It actually supports me evenly, so no cane! Completely irrelevant though.

I’m going to have more tea.  Try and wake up.  Then do a couple of loads? It’s so late now nobody will be in there.

God help me.  Well, he can’t.  Agnostic Theorists won’t make it happen.

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In zoned voice to Receptionist with rising tears toward end:

“Hi, it’s me.  I know we talked about delaying things because of my living situation.  Yes, not knowing about the second Bedbug Treatment.  And not hearing back from the maintenance guy about ANOTHER flood from the woman upstairs.

Well, I finally heard back from him, and would have called you earlier but the office was closed.  We need to reschedule the appointment.  In fact, I don’t even know when I can do the bloods.  You see…even if for the time…
when.

..
.
…well, uh, wait, they’re doing more pest control.  Ants and mice.  And I was told my second Bedbug one was two days after?

Things have been damaged I’ve found.  I’m making a list for my Insurance Company because I did everything right.  And the medical letter? It said everything right! But now I have to tell them everything!

Snniff,snifff, I’m sorry.  So it’s not just my living situation and all I have to do there and I don’t know how, but the bloods, and I don’t care.

First week of the month.  That’s when I get my period and the catamenial migraines that mimic strokes and it was so bad this time and real migraines gr…uhhh…ummm Sssoorrryyy…

So no way I could do them on time, in bed for days and I don’t care.  Ahhh…ohhh..snifff…shighff.  I don’t care about my dying liver, having all three Hepatitis A, B and C or dying.  I don’t care.

I can’t do anything about anything.  What’s the point? Who cares and all I have to do is going to take forever anyway so everything is just going to have to wait.  I can’t do anything about anything.

The only thing I can do is get my hair cut.  That’s all I can do.  Get my hair cut.  And dye it too.  That’s all I want to do.  Maybe if I can do that.

So I guess I’ll have to call you back when all of this has to be done.  Thanks, hon.”

The tears will be full throttle if you couldn’t tell.  The call would not be aggressive in any manner whatsoever.

The “hon” is because I have a very special rapport with my portion of the Staff (Sweetie GP’s Staff.)

They would probably (definitely!) ask me if I wanted a call from Sweetie GP. 

With the call I would continue to be so upset, I’d be confused and anything could pop out of my mouth. 

Although note it would not be Passive-aggressive if it sounded like it, because of our relationship.  It would be purely because I was falling apart all over.

This will basically be the call I will have to make to the office tomorrow or Monday.  And sadly, that’s how it will go.

Unless I just shutdown completely and state we must postpone.  However, if I’m asked any questions? Then I might start falling apart.

I think I’ll go for the second option.  Shutdown.  The Receptionists are always busy.

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It took me a while to figure this out. 

If you feel like something is wrong with your health, have a diagnosis where you need help because things are a bit unstable.  What should you ALWAYS do?

Track things! Get a calendar, mark things down like a journal and monitor every and all changes! It doesn’t matter how small.

There were so many variables that took me so long.  The largest being my head such a disaster.  Head injuries can, to whatever degree, turn you into a wreck.  I still have both retrograde and anterograde amnesia from one.

A few episodes happened when I was discharged, but I didn’t clue in to write down dates.  They also just resolved with time.  Not a lot of time either.  Maybe two hours at most, and they were hardly as intense as before.

Everyone was still so focussed on a stroke at first, waiting for me to get my MRI, see its results…  That was going to take a month or more

Recently, I had two other episodes. They were one day after the other.  I certainly need to journal or track that!

The second one wouldn’t resolve after five hours, and was almost as bad as the one that sent me to hospital originally in July.

I finally broke down and went to hospital as I just couldn’t stand it anymore.  Yes, I am a VERY stubborn patient.  Don’t be like me!

I hadn’t thrown up like the first time, but guess how the Paramedics found me? Hunched down down on my knees with my head hung over the the toilet bowl. 

They gave me this traveling vomit bag.  It wasn’t completely a bag though.  It had a cardboard “box” at the top.  It was shaped like a Chinese Food Take Away Carton.

No offense to my Asian readers, here.  I mean it.  However, I couldn’t hold back from making a joke to one Paramedic and say, “This is what they give you when you have too much Chinese Food and it makes you sick.”

I was taken to a different hospital. Now, to treat the symptoms and “make me more comfortable” even though I was dying in pain.  Are you kidding me? 

Although, I actually passed out.  Are you seriously kidding me?

IV Fluids.  Standard.  IV Toradol which is an anti-nauseant.  I’ve had it before and it’s made me feel nice and floaty, but never knocked me out! Are you curiously kidding me?

Some other thing strung up and pumped into me.  I can’t remember what it was so maybe that doped me.  Are you illegally killing me?

Finally some Steroid. It was shot in liquid form, into my mouth via a syringe.  Are you weirdly killing me?

It was for “Rebound Pain” over 72 hours.  Okay.  Now you are RIDICULOUSLY AND STUPIDLY KILLING ME!

This is the best hospital in our city.  I want to go there ALL the time.  It’s only that they didn’t know the history (now irrelevant) and how to treat me properly (now irrelevant.)

Although, I will be going back to an EYE CLINIC they have there.  Yes, Clinic.  Not just some Dr. Who Knows.  I think even a Neuro Opthamologist.  Awesome!

Does anyone out there remember my TASE? Typical Absence Status Epilepticus? If you don’t, you can search for the Horror Show on the rest of my Blog.

It was catamenial.  That means, to do with your Menstrual Cycle and even days surrounding it.  I was lucky enough to have ditto for Ovulation.

Well, now I’m having the same with migraines.  I’m on my period now and those two one day after another? That second one where I had to go back to hospital?

Nothing has cleared up yet.

With this now in mind, I can EASILY track all the others from dates of my cycles.

This is a disaster.  More than.  Sweetie GP has been on vacation for the month of August.  I have an appointment soon.  She’ll probably agree with me:

WE HAVE TO GET YOU TO YOUR NEW GYNECOLOGIST FOR THAT PARTIAL HYSTERECTOMY NOW!!!

No kidding.  I have to stop getting my period! Moreover, I won’t even bring my anemia and how bad that is into all of this.

Also, Non-Arsey Neuro is going to call me as he’s away for a bit now too.  Stupid Summer Vacations! *laughing*

I will be suffering for a long time.  None of this will be resolved anytime soon.

I have to try for some kind of stopgap.  My Triptans can’t handle this.  I’m going to ask him about Ergotamines.  They might be VERY good for this in terms of how they work.  The dose schedule, no contraindications or med interactions for me.

Another neat thing about some is they can ease menstrual flow.  But I don’t know if that would happen for me at too high a dose.

There is a specific Ergot derivative to do this actually! It’s called “Ergometrine.”  However, it’s not used to treat migraines

So, that’s that. 

I think this needs to be handled ASAP.  If these migraines are bad enough to give a stroke presentation, and they will continue to happen on a regular basis? What (else) might they be doing to my brain?

I already have so many comorbidities.  Right now I’m living in a perpetual state of a very significant TBI. One that already affects so much of my daily functioning. 

It also does bring out features of my other comorbidities now that I think of it.  Absolutely.

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Sorry.  Not a very catchy title.  Blame the migraine (and Maxalt – my triptan of choice.)  I’m actually turning my mobile at a weird angle for the photophobia.

OMG.  What am I doing??? I want to write something because I’m ticked off, but I’m waiting for the Migraine Murderous Reaper to come knocking on my door–not some courier with a belated birthday gift.

I’ll get back to this.  Post-Postdrome.

Sorry, but thanks?


I kept holding my little AA Chip I got today after my first Meeting.  No.  I kept holding it ALL DAY.

And crying.  And crying.  And crying.  And crying.

And smoking.  And smoking.  And smoking.  And smoking.

We’ll deal with that addiction later.  Although, Sweetie GP has a Clinic to help with that. 

Holy, crap! Multiple Doctors working in the same office and they have Clinics to help you with everything and they’re all in the same office.

The building is also a high rise with other occupants.  Quite.

This is going to be rambly as all get out.  Or get up? Ouch.

I took my meds pretty early hoping to pass out like a bomb.  Huh? Passing out wouldn’t sound like a bomb would it? I don’t know.  I pass out quietly.

Slow.  No? I broke my role of only two Valium a day to three to kick my sleep meds in the arse if they don’t kick in after a long time.

It’s okay that I do this though, kids.  No abuse of my meds.  All my Doctors know I do this.

Finally! But very fitful.  Then a few hours later? 0300hrs? Oh, man!

Had to go to the bathroom but MIGRAINE!!! Gulped my Maxalt but after that, I knew that going back to sleep would be impossible.

I’m so gone.  I don’t think I can write anymore.  Proofing this will be impossible.  I think you guys will get it though.

When my Insomnia gets beyond control, I find I can usually (or possibly?) get some winks before sunrise.  Maybe I’ll try that.


First, I’d like to say a MASSIVE “THANK YOU!” to all of the new people–and all the others–the “old?.” *laughing*

But thank you so much for all of your new Blog Follows, your Post Likes, and Twitter Follows as well.  I am not boasting or trying to sound vain.  I never do that.  Unless I’m writing so crazily (or not?) about something, it might come across that way.

The point I’m trying to make, is that there have been so many of you.  I can’t keep track! My Inbox can get flooded and I can’t check all of you out! I want to, but on the mental market? I’m not the latest cyborg for sale.  I’m used and a refurb where the Techs didn’t do such a good job.

So I’m sorry for that.  However, I do have everything neatly organized and filed.  I can find all of you, so when I get… *sighs*

My blog sucks, as of late too.  I have a theory about all of you new people; why you’re flying all around my head, then eventually landing straight on it!

NOTE: I am in no way comparing my New Followers like any annoying insects.

My theory is, you are stumbling upon Posts from the past.  You read them, and think, “Hey! This chick’s really groovy ‘n keen ‘n lots of other ‘n stuff.   Or ‘n AWESOME one! This chick’s really out there ‘n I have no clue what sort of person but I’m kind of confused ‘n scared ‘n so curious ‘n at the same time…”

You latter folks are the bravest of all.  It’s like a, dare in your mind to nail me on my Blog, upcoming Posts and new Twitter jazz.

As far as Posts from the past, and how many of you “old guys” are perhaps still around?

I know I put a lot of you through a lot of shit! I know people have given me online defenestrations! I probably deserved it.  Then, there are all of those who have done the same–I just haven’t known about it.  Anonymous Defenestration! 

Me being tardy? My MacBook is totally screwed, so I just tried to replace some things on my Sidebar. Then, for some reason all of my months of blogging became a list!

That proves it.  A little tardy but this blog’s been up for eight years.

Supreme Insanity.

I’ll still keep blogging though.  In doing that?

Beyond Supreme Insanity.