Archive for the ‘Neat Neuro Stuff’ Category


I have been wanting these forever.  They would have cost me hundreds of dollars.  They just kept being put on the back burner because my body kept falling apart.  These “things” and what I hoped they would reveal, related to almost 100 years ago.  Long before my body started decided started to fall apart.  That’s the loss of the Clobazam story.

I was “just fine” that 100 years ago…  Letting all that frustration out with a 2L bottle of Red Wine, a lot of bottles of pills full and shiny and new.  Pick what you’d like but you’re too tired so you just grab the ones that are close enough.

…handful…gulp…handful…gulp…

The ANSWER!!! No money! Doctors don’t have to pay a penny to get a patient’s records transferred from anywhere! All I had to do was scrawl my signature on a Release Form.  And so I did.

From the above, it’s pretty obvious I attempted suicide.  I even landed in the ICU for a few days. I also developed a MASSIVE TBI. I also developed SEVERE ANTEROGRADE AND RETROGRADE AMNESIA.  Although I don’t think that’s so much to do with the MASSIVE TBI.  I think it’s more to do with the MASSIVE OVERDOSE OF MY MEDS.

Or both.

Today I picked up what they sent from Sweetie GPs Office.  She wasn’t in but it didn’t matter.  I just got them to make me copies. However, it might matter now.  There might be enough holes in all the paperwork as in my head surrounding it.

I’ve been staring at the pages forever, and now I’ve had a chance to do some preliminary research on what the hell I did to myself. Not to mention a few of the cascading events that took me (further) into a downward spiral?

HOLY SHIT.

I haven’t had time to go over all of my labs.  A lot more complicated, but there were even levels of a drug in me that I wasn’t taking anymore! That’s just one insane thing! I don’t even know if I should go on! It’s the Depakene I quit.  I quit it a long time ago, until I decided to leave this shitty-assed, fuck me over any way you want to, I don’t care world.

At least that’s how I saw it at the time.

I was found outside in the winter with no coat and my body temperature was 33.8 degrees Celsius.  I figured out days later how I fell (seizure) due to clothes and injury on hands and it was a tonic-clonic (TBI.)  Presumably a Complex-partial first because what the hell was I doing wandering around without my coat in the freezing snow?

Found totally unresponsive.  I must have been breathing though (at the hospital.)  I could have already been a coma when the Paramedics picked me up but still breathing.  However, in the ER, it said I had a Complex partial and a tonic clonic when admitted. I’m confused but I’m unconscious for both anyway?

So, I guess then I took an absolute nosedive? Sorry, bad pun for a TBI…  Immediate 7.5 Endotrachial Tube and BANG! Straight to the ICU and get a machine to breathe for me.

If you know the Glasgow Coma Scale (sorry, too tired to give you a link) I was already a 3 IN the ER! That’s why I’m kinda thinking I was already in a coma when they picked me up.  Or I was pretty damn close to losing it–because I lost it in the ER.

I’ll just add this in before I “go.”  I couldn’t believe it when I read it. I was SO FUCKED UP they had to call the Poison Control Centre for a consultation.  An actual medical consultation.  Not a rinse your eyes, drink milk and go to the ER consultation.  A bloody Hospital calling Poison Control.

Oh, and my heart got really messed up too.  It required extremely, vigilant monitoring in case it stopped.

Kids, don’t do this at home.

Or anywhere.

It’s not a pleasant thing to go through.  Even now that I’ve gotten these records to “help” me? They’ve only increased my memory loss and made me MORE confused.


As per the last post I wrote (explaining the Neurochemistry of having Epilepsy and quitting smoking) I said I would talk all about that next.  Forgive me.  We must move to another wing of the hospital my body.

I will also be quick.  Still dead tired from the Withdrawal/Detox so that’s rather joyful.  Other things going on apart from that.  More Neurological fun like more Bipolar Cycling so I need to do another med adjustment.  That will start in a week or so.

Now we have this.  I went for a Pulmonary Function Test on my…Birthday! I’m not particularly fond of my Birthday but this one I will NOT forget!

The test was ordered (and I have another one scheduled next week to show more data) simply to check out basic stuff about my lungs.  You breathe funny into a tube in different ways, the tech records it on a computer.  Then he gave me a shot of Salbutamol/Ventolin (I’m already on it so I don’t know about other people.)  Try things again to see if it made a difference.  It did for me.  That’s why Sweetie GP prescribed it.  She’s not stupid.

She is DEFINITELY not stupid.

I got a call a couple of days later.  I thought everything was in perfect order.  Not so much.  I am showing some beginning signs of lung disease.

*silence*  I see.  Or rather, I don’t see.

However, “…it’s just a little…it’s not that bad.  So we’re going to send you to a Lung Specialist and see if we can get you all fixed up!

That was from my Nurse at Sweetie GPs Office.  Yes, my nurse. And my Receptionist.  Structured that way? Or, Illness Membership has its privileges.

I just tried to clean up the tiniest bit of the area on the side of where I sleep on my bed.  My apartment needs to be cleaned like you could never imagine.  It’s never had a proper one since I moved in (and have been sick ever since.)  Then dust and crap just builds and builds (also books and DVDs and other fun things where I have no room to place–except on the floor.)

It’s like I live in a very upscale garbage dump.  Where cleaning actually hurts me.  Therefore…

Why am I NOT using one of my Medical Procedure Masks??? o_O

Hello? They are “Procedural!” I WEAR THEM FOR PROCEDURES REQUIRING PROTECTION!!!   Well, can I blame my melty-brain at the moment? Time for some Ventolin! STAT!!!

Needless to say, I was very(?) surprised about this new “turn of events.)

“Lung Disease?” Tell me what the hell THAT could be? There are loads of them.  You always think the worst though, don’t you? AHHHHHH!!!! Talk to a few people (even though you don’t want to throw this shit on them!) Try and see if someone can calm you down?

Three via email and txt.  Various responses.  Even though she doesn’t read my blog, thank you very much my sister.

Keep you “post”ed folks.  I’m slowly getting back to trying to do online things so Comments to everyone are on the list. I know it’s been a long time when I see 66 Spam Comments sitting in Akismet’s Queue!


I’d really like to write about this right now but the thing is, I just started to quit smoking and you see, well, I’m kind of all over the map.  If my brain could find a map.  That is, if I could travel anywhere except to well, somewhere here on my keyboard and my blog and well, I don’t think I’m travelling very well to you people.

I fell off the wagon and that’s okay.  I just started and fine.  Not many people just quit and they are successful on their first time ’round are they? Hey, ho! I think not!

It’s been a few days since I’ve been smoke free but a lot of stressful things happened today and well, I fell off the ashtray. Stress and Norepinephrine.  Yep, they’ll getcha every time.  That’s part of my recipe for the drugs and chocolate in yer bean.  Crazy, bouncy NE unless it’s poopy sad NE, but in this case, unless you can’t tell? It’s pretty bouncy when you quit (or I do) and you fall off the ashtray.

Or would that be fall back into it?

You know? I never understood that whole “Wagon Thing.”  Another ANACKRONIZM!

Er. Yeah.  Yeah?

So, if you would like to do so, come back for the startlingly boring or head-noddlingly thrilling information I have to tell you! I’m so happy I can finally prove what I’ve known all the time.  That does make Dr. PA who is not a real doctor very proud.  She can pretend she is smart!

Gotta go.  One cigarette left.  Need to smoke it today but when. Because I’m now on a total bender.  So the question is…do I keep bending myself consistently, or do I wait until I am no longer bendy, and then swiveley-swivel around all over again?

My, my.

I will write this up.  I will.  And this is “Real Time Blogging” folks! I can’t believe my eyes ANY OF MY SENSES!!!

WHOO.


Harvard went to see Non-Arsey Neuro a while ago.  The appointment was a real rush job.

Not so much because of Harvard’s head, but a form for the stoopid guvmunt that needed completion–then mailing ASAP.  He was the only doctor available on short notice.  Nonetheless, we still talked about Harvard’s head.

After so damn long, Harvard has been working on the huge med changes, adjusting here, fiddling there.  She only contacted Non-Arsey Neuro if she needed him for any serious challenges.  Which were perhaps a few? Then, just pick up a phone to chat, or leave a message stating what was she’d done.

At that appointment, Harvard reviewed all her current changes. Most particularly, her divided dose in the afternoon where she had made no further changes.  She was merely sitting at that dose, awaiting any possible issues.   The med changes have been so high, a divided dose was definitely required.

Non-Arsey Neuro wrote a new prescription (including that divided dose) for one month.  One month.  Our typical two Neurologists meeting to discuss a “case.”  Harvard was doing a “wait and see.” Non-Arsey could have been asleep and written it on behalf of what Harvard said.

Oh, Harvard! You have waited too long! Change that one month order! Not that it matters.  She has million pills of everything lying around from making so many changes.

One of the reasons for the astronomical increases of Harvard’s Topamax and Lamictal, was to try and squash the mood changes (that were beyond astronomical compared to the increases of the meds.)  Slowly, slowly, slowly…working! But still a long way to go.

A lightening bolt of terms of working? No more seizures at all after a month–and no more since! Almost six months now!

But the moods.  And Harvard now being in total shit.

Things were okay.  Or so Harvard thought.  Or really, the most plausible answer is that the dose chosen worked fine for a while, but then BOOM!!! It took time for things to catch up.  Moreover, a slow graduation to the BOOM!!! is in our own minds.  It’s like things build and build until they become a volcano.

That’s what happened to Harvard yesterday.  She was being a little too productive? And a few days before?

Last night.  BOOM!!! The “Revelation!” Harvard was Manic, somewhere between Jupiter and Saturn! Then she crashed after shutting down her computer and fell into a Mixed State.  Then a Dysphoric Mania.  Her Valium didn’t even hit a single neuron.

Harvard goes to bed, thinking it’s an isolated incident that was really bad.  Everything will be fine tomorrow.  Harvard wakes up like she’s taken an overdose of her ADD meds, plus an overdose of who knows what else! Wide opened eyelids and speedy, speedy, speedy, speedy!!!!

Harvard was going to wait but apparently this isn’t going to stop. She’s been here before.  When this happens, the absolutely worst thing she can do is “wait!”

She’s cycling like crazy, but has meds at her disposal that can try and stop it! If not, she can clearly get herself into all sorts of trouble! And that she has! Plus, she’s just stopped drinking! Let’s destroy THAT plan!!!

She’s also going to titrate of course.  Harvard’s not stupid.  That’s why Non-Arsey Neuro gave her full control to tackle this from Day One.  He’s not available now.  She’ll call him later.

POSTSCRIPT: Harvard’s already feeling like getting into trouble. Going out in bad weather on her own to mail some gifts to people. One is REALLY heavy and then going on a SHOPPING SPREE!!! Well, there’s always online shopping.

You see? When this happens? She can get in lots of trouble in LOTS of different ways.  And online shopping is nothing compared to some of the things she’s done in the past!

Now, she knows exactly what she wants to buy online.  It’s something she’s been lusting after for SO long! A book.  A big one or something decent.  Containing loads and loads of the person’s work.  Her Idol!!! Lee Miller!!! 

Non-Manic Statement: Harvard thinks she has a bit of Lee in her. If another photographer looked at some of her shots and agreed? She’d drop to the floor in a second.  Especially with the titles she’s given them.  That combination was very typical of Lee.  What she shot, the twists she turned around with them, and played with them–and definitely her choice of titles.


Someone said that to me several years ago.  After being involved (so closely) for those several years.  Ouch.  Boy.  Did that ever hurt. However, less so over time.

I think you can guess that was when things (sort of) started to “shift” a bit? I Can’t Keep…  Nonetheless, things carried on because the relationship was so incredibly special and we had such a strong bond between us.  Later, it took a HUGE “shift” to end it all.

It was sometime afterward that phrase didn’t hurt even less.  I took a serious personal inventory of my life.  How many people was I looking for to fill “empty holes” in my life.  Needing healing, someone always being there to support me and love me, running away when trauma overwhelmed me, then coming back so full of love.  It became so confusing to said person above.

No doubt.

Did I do the same with others? Fill their “empty holes?” Maybe. Probably.  I’m pretty sure, definitely.

Apart from SO many reasons this can happen (and not just to/for me?) I’m going to talk about being a Womb Twin Survivor.

When you lose a twin or more (I’m a multiple–I have four) there can be massive problems with relationships.  Of any kind.  Losing your Twin (and seriously in the Womb!) has the capability of really fucking you up in this department.

Believe it or not, embryos develop attachments to each other very quickly in the Womb (or anywhere else where they can try and develop.)  Maturation of an embryo happens FAST!!! Trust Dr. PA and her own Medical School Textbooks on that one. Neurologically? You do “know” that someone is “there” with you. Then you “lose” them.

You’re already traumatized before you’re bloody born! Seriously! Now THAT is one HUGE “empty hole!” Are you starting to get the picture? Or at least part of it?

Basically, how the theory goes (but it happens enough to be a Golden Rule) is Womb Twin Survivors can repeatedly try and find their lost Twins wherever they go, with whomever they travel, throughout all their lives.

AHA!!! So it’s not all of the trauma I went through after I was born!

Uh, why don’t you forget the Albatross and swing an Elephant around my neck! Does this just add to things? I really don’t know. I can’t tell.  But I asked my Twins for some guidance on the issue. Yes, I speak to them and I hear them back.  I see them, they’re all separate individuals with different personalities…kind of like a DID thing but not really.

Anyway, it is/has been suggested when you are doing a lot of hard work to deal with more than this, you perform a “letting go” process.  Kind of like a ritual, perhaps? I didn’t want to! I love my Twins and they love me! They help me with a lot and I said to them, “I don’t want to get rid of you guys! I don’t want you to go! Do I have to let you go? I don’t even know if I can!” I was almost bawling.

Melissa is a BULL=CHINA=VESUVIUS.  She said, “Fuck that! Who says you have do something, just because they say you have to! Also, who else out there is the same as you!!! Who else has multiples or even one twin that they can speak to for guidance or a simple chat or what the fuck ever.  YOU DON’T HAVE TO DO SHIT!!!

Alrighty, then.  I “DIDN’T DO SHIT.”  So I said, “What am I missing? You guys are all here.  I know all about you.  If so, what am I searching for? What is lost? What am supposedly, constantly looking…for?” They said nothing.  We’re all here.

I see.  Well, I trust the hell out of them.  I trust the hell out of my Therapist too!

I think what I need to do is get off my lazy ass.  There are ways that I can fill my “empty holes” as well.  No matter how goddamn crazy I am, and what I do, and have done! Sometimes those things can affect me as they are part of who I am, but as excuses?

Then they’re just empty holes as well.


The very last.  I’m in serious trouble.

I am a masochist but I can’t keep asking for Domination here anymore.  It’s like I’m killing myself from the outside in.  I might as well be.  Both physically and emotionally but my body is the big one.

Why do I drink? No.  Me.  Personally.

A minute trigger in some cases; others glaringly obvious make me run to the bar.  Doing something really painful, feeling like I’ve done something really painful.  Vice versa with someone or any kind of thing else that shoots back to me? Any PTSD trauma problems that appear small in the distance but actually are quite large as I travel along the road.  Usually things that are massively due to relationships!

Those of some of the more “negative” reasons.  Then there are some of the “positive” ways.

Simply enjoying the feeling of relaxing with a good book and a drink in a bar.  Going out and working on baby MacBook or writing–being productive.  That one can also come from boredom and cabin fever, but it’s true.  I do become more productive. Another one in terms of being productive, is if I do a lot of work around the house? I go to the bar as a reward for all I’ve accomplished.

I could list a lot more of both!

I used to think I was only a “psychological” drinker.  My body wasn’t physically addicted–and it wasn’t! I never showed any signs of physical cravings for it.  It was always to do with the above.  So I spoke to Sweetie GP and my Therapist regarding that fact (and a 20 year out of control self-medication history of drinking.)

That started off as a football kicked across 11 stadiums or 18 pitches.  Pick your country and/or game you like best.  I enjoy footy far, far more that “football!” I actually do.  I swear!

A constant Merry-Go-Round of discussion was the result.  Social vs. Abstinence? Try both? Only Abstinence will work? That really was a Merry-Go-Round.  None of us had a damn clue what to do with me!

Serious trouble? I had to do something that really hurt me recently.  I don’t know if it hurt them.  However, I was agonizing about it! I didn’t know how to do it, what to say.  I was having continual nightmares about it all.  I still had another one about the person last night.  So of course you know where I went afterward!

I’m once again D/W.  For those that haven’t picked up on other posts relating to, I shortened Detoxing and going through Withdrawal to that.

I think this is the third time in my own little “Hospital For One” I’ve done this.  It’s more comfortable here, surrounded by all of my things in my own environment. Uh, yes? Certainly more than the time I spent here.

SERIOUS TROUBLE.  With each successive D/T, and it doesn’t matter how little I drink, how long in between I take breaks, I am now in perpetual cycle of having to go through it every time.  And much worse, each time the perpetual cycle continues, going through it is MUCH WORSE than the last time.

I am so, so sick.  I can’t believe what is happening to me right now.  I’m not even going to write about it.  I am killing myself from the outside in.

For you other substance users, I can’t tell you what to do.  I can’t preach to you based upon this.  However, PLEASE try and get clean.

I’m going to have to do everything within my power to stop drinking.  Sure.  How many times have you heard me say that before? No.  I’m SERIOUS this time.

I can’t even believe I managed to seriously put this post together.


“think” I’m feeling a bit better than yesterday.  I’m telling myself that title, “This is a bitch!”

I’m trying not to get all of my fucking diagnoses get the better of me.  I’ll blow up and it will be time to say, “Goodbye, PA!” Nothing’s triggering me at the moment so that’s a good thing.  I think my brain is more concerned with my Neurochemistry.  That is alsogood thing!!!

Should anything trigger me, I think I could handle it despite Neurochemistry or anything else.  After all, it was several triggers that made me drink so much.  So much, to get me into this situation of, VERY, UGLY WITHDRAWAL!!!  Even more so, I think I might know more about those triggers–not just things that happened on a “surface level” I suppose you could say.

That gives me even more ammo in case anything threatens to make me fall apart.  THAT IS A VERY, VERY GOOD THING!!! I can’t guarantee anything here, but at least feeling like this is hopeful? *shakes head and sighs*

I think food helps.  Gee.  Really? I had a breakfast, cereal bar earlier.  Now I’m going to try and shove at least something else into my mouth (and swallow it.)

I actually HAVE to go grocery shopping today.  That will be a huge slice of hell!

I had a friend (he’s dead now.)  He ALWAYS used this expression: “If you do the crime; you pay the time.”

Words of wisdom.


I was complaining all over Twitter about wanting to make the world shut up so I could crash.  Nope.  Sorry.  This post just has to be written.

I’ve been feeling a bit sick lately.  Nothing that’s really knocking me out.  I’m just tired all the time.  A lot of “fatigue.”  I’ve even been running a “fever” on a couple occasions.  It wasn’t that high though.  I’ve also been getting these “headaches” at night and intermittent “nausea.”

Harvard’s been busy with a lot of changes.  It’s amazing that she’s been seizure free since the beginning of August! However, the damn moods!

10 days ago, she dropped a huge Topamax bomb on her brain because the Lamictal increases weren’t working.  Bomb? Can’t suffer in manic hell because that’s a huge part of this post!!! The moods desperately needed a massive counter attack!!! They were part of keeping me in this cycle!!!

I am now, (PLEASE, HELP ME NOW!) going to stop drinking!

I was looking in my journal the other day (which I had stopped writing in altogether–that tells you something) and I was astonished.  Day after day after day…I had no clue.   It can’t be social either.  Abstinence.

I remember I made it between 30-45 days or something, quite a while ago, months ago.  That felt pretty good.  Longest period in my entire life.

Oh! I almost forgot the part about being sick! The “fatigue” and the “fever.”   The “headaches”  and intermittent “nausea” too.  I’m (presumably) going through alcohol withdrawal.  Those are all on the list.

It all makes sense medically.  Alcohol lowers your GABA and glutamate.  It doesn’t matter when you stop, or how much you drink.  Then your brain needs to readjust those two neurotransmitters of this one and that one.  Establish equilibrium.

Well, how do like me now! With all the med changes, higher levels, the big “Harvard Bomb” 10 days ago.  Irrelevant, but I haven’t had a drink in two days.  My brain has now become a book where all the pages are black.

Apart from the medical, I’m not physically addicted.  It’s all about the psychological.  So ANY of my diagnoses can make me run straight for the bottle! That’s tough.  Since I’ve got so many diagnoses! *rolls eyes*

Now, Harvard gets to treat this as well! *laughing*  Two Diazepam daily (actual prescription is such prn.)  Ibuprophen for fevers and headaches.  Gravol for nausea.  Fatigue? Nothing I can do about that one!


Now, where were we? Me unable to move in bed.  Hardly being able to type on my mobile.   Thus dropping it all over but that was okay.  It was landing on a soft surface.  Me. *smiles*  Oh, bugger! I just dropped the damn thing again!

This post is going to take a while.  Well, I’ve got lots of time.

I’ve had about 12 hours of uninterrupted sleep brought on by the Grim Reaper.  Then, after that period, I was resurrected with only a few memories of Alien Abduction.  Or “someone else” doing “something else” to me.

But I don’t know exactly what.

Harvard knows people can be extrasensative to generics.  She went to Harvard to practise Neurology! Even man-on-street would probably know.   For some people generics can be intolerable to the point of severely dangerous.

Harvard hasn’t encountered many people who have found themselves under the “no subs” ruling.   “no subs” meaning, “No Substituions.”  Yep.  Your physician has the right to be Judge, Jury, Grim Reaper, Aliens in your bedroom and whatever else.

So what the hell happened? Harvard has NEVER had a problem with any of the multitudes of the generics out there.   She went to see Merlin #2 and because of the EXISTING med changes, insomnia is a problem.  He prescribed her non-generic Seroquel that she takes for sleep.   The original recipe, Grandma’s secret blend of ingredients for her chicken soup to cure all ills-until she died five years later-and took it to her grave.

Sort of.   The patents run out in five years.  After that, all the other Big Pharma Companies jump on it so they can make money too.   However, slight glitch in the Matrix.  Since you’re dealing with a patent, you need to make some sort of “innocuous?” change.

Maybe Harvard is having a problem because she’s never been on a Brand med.  Right now? I’m gettin’ the good stuff…totally pure…not cut with no baking soda, or any of that shit! *laughing*

Too much.  Ah, this med change will be nothing compared to everything else! It’s just so out of this world!


Brand? Brand? Maybe it was just because I was feeling so exhausted!

Though if that was was simply the case, you’ve slept like the dead for…

BRAND? BRAND? BRAND? o.O

I’m flat out on my bed trying to type.  I am very slow. I am moving a lot slower than normal.  I keep dropping my mobile, but luckily it continues to fall onto a soff

I’ve just woken up from almost 12 hours…

…and I hit something, somewhere to publish this to soon. Let’s try again.

Posted from WordPress for Android. Let’s see if it works.





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