Archive for the ‘The Tummy Blues’ Category


I think I’ve used that before.  When things have gone sideways, pear shaped, become frozen, completely imploded, people have been stalking me, I’ve been stalking me and many other things.

Here’s a new one.  I’m now visually impaired to some degree, so forget using my Mac.  Even tiny mobile screens can become brutal. 

“Visually Impaired?” you ask.

Modus diagnosis operandi is Continual Migraines.  Shrapnel in my brain, from being admitted to hospital for a Stroke.  That was a year ago.  Except it wasn’t a Stroke.  It just sure as hell looked like one!

So it was probably a TIA then.  They can present almost exactly the same way.  The primary distinction is no damage or insults to the brain, whereas a Stroke generally shows something when you look at any/all parts of it.

Plus YOU can show a lot after a Stroke.

Well, my brain’s been insulted a lot.  By seizures, falls, people telling me I’m stupid, and yes, prior migraines.  However, this is a different braingame.  Too much.

Migraines can mimic Strokes and TIA’s so I probably didn’t have one of those either.  It was “The Migraine Heard Around the World.”

I’m not kidding.  I’ve been through a lot of funky medical experiences but this? It was beyond belief.  Surreal.  My head really did explode.  Okay, it didn’t but at the time…you get it.  And my eyes.  Psychedelic and black vision.

Try to imagine that.

Now, blurry, photophobia, pain cognitive impairment.  So, sunglasses, don’t push using my eyes, dimenhydrinate, new med (Beta-blocker Propranolol) and cane. 

Now back to my Blog after that fun stuff.

This whole Blog has turned to shit.  I honestly think this is the lowest of the low.  It’s never been as bad as this.

I don’t have the imagination to imagine conjuring a beginning to begin fixing it.  Much less time.  The first thing would be my Blogroll. 

How many old and dead Blogs are lined up there like ratty, teenage socks, hanging out to dry but they’ll always reek? No doubt more than I already know.

Then, replacements.  I’ve met so many great people with amazing Blogs out there.  However, due to “Technical Errors” (i.e. I’m a fucking idiot) I never filed them along with my others.

“Look and Feel?” Oh, bloody hell.  Just the thought of it makes me feel nauseous.  And since I’m sick I’m already nauseous!

The plopping of my current template into (better said ONTO) another template can make you want to heave, simply by looking at it.  Run away horrified too.

Eventually. Hopefully.

I haven’t shut everything thing down after so many easy (and difficult) situations.  That must mean something.  Perhaps the fact, that it’s actually not the lowest of low after all.

Yet?

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I mentioned on Twitter that it might, might be time for me to hang up my Blogging Hat.  Or, to say stop my Blogging Hands.  That would be more appropriate.

It’s not an ongoing, forever-we-experience, Blogging Crisis.  It’s not Writer’s Block.  I could think of many things to write about.

Things have changed.  Some that are easy(ier) to explain, some I don’t know if I can, but I’ll try.  Some I don’t even know if I can explain to me!

My Blog has been up for nine years.  I don’t know how long any measurement that means.  In terms of living, averages of any kind, but that’s pretty irrelevant, I think.

I mentioned the word, “living.”

Are Blogs really living entities? I believe the answer is a very firm, no.  We MAKE them living entities.

I made an analogy on Twitter as well, regarding the “feelings” between both my Blog and me, as a person.  I said, “I feel like I have phantom limb pain.”

It’s true.  Something has been severed.  The “living entity” I have created, that which was so connected to me…  It’s not anymore…  But to what degree, and even what part of my body, I do not know…yet.

Despite still writing a bit more, I have been tremendously unhappy with my Blog.  The beginning of things being severed? There were times I couldn’t even look at it.  Now, things seem so, terribly disjointed and I can’t fix them.

I definitely don’t expect you to understand that last sentence!

Does reading my Blog make me cry? *laughing* Of course not! It’s my life!

Thinking about my life might make me cry, but my entire life isn’t on my Blog.

The only times I’ve cried reading my Blog was years ago.  I would receive these Comments from utter strangers.  They would pour their hearts out to me and tell me I literally saved their lives.

I would sit and bawl my eyes out.  Why me? Who am I? I didn’t say anything? It took a LONG time to respond to people like that! But they were few.  I’m not being egotistical.

I write a lot about having no life.  Well, I do.  We all do.  Perhaps not as we’d always like it, but you can’t escape the fact.

How many hours have I Blogged, read other Blogs, spent time on Twitter when that came along later.  How about all day and all night?

At the time it felt just fine.  Really? Not so really. 

That’s not healthy.  I mean, for me it isn’t.  It’s an unhealthy escape.  Too easy to muck about when I need to focus on getting myself at least somewhat together.  Also, that “somewhat” is just a start.

How long has it been since I really got into my own writing? I mean really got into it? I have SO many unfinished projects, I haven’t sent any Submissions to anyone in ages. *sighs*

Am I done? I sure feel done.  This Post has been exhausting to write.  Difficult, too.  Don’t cry, PA!

*teardrops*

But for now, I’m still here.  I haven’t made a final decision. 

Maybe Dr. PA can perform some surgery on both sides; to mend herself and reattach what she brought to life and into this world.


Okay.  How long ago did I say I was going to start Blogging about this subject? I even added a Category for it.  Which is not even lying dormant or hibernating, but catatonic.  No, it’s DEAD.

I had to write some “Introductory Material” for everyone to read, before jumping into pots, and frying pans, and trash bins.  I despise litter but some of you might even have wished to defenestrate what you prepared.

Or, throw it all over your neighbour’s door if they’re really mean to you. 

Perhaps the possibilities are endless.  It might simply depend upon who you are as a person, and what dish you’ve prepared.  Both? If you’ve made yourself vomit or not?

Let’s not focus on the NEGATIVE though! I’ve made some awesome stuff that’s NEVER made me I’m emetophobic so I can’t vomit! Thus, I have complete confidence that you too could become the best Experimental Cook beyond your wildest dreams.  In fact, you will be an “Experimental Chef!”

A Susur Lee, Anthony Bourdain, many more (only you’ll have partial, prefrontal cortex damage.)  Maybe a Gordon Ramsay? Granted he has no frontal cortex in his brain period!

I think I know where the Notes are for my “Introductory Material.”  I’ll go on a wild goose chase now. 

However, that’s one thing I DO remember.  Wild Geese aren’t in my Notes.  I’ve never even tried to cook a Wild Goose, much less chase one!

That paragraph was Groaner Central.  Almost, embarrassingly so! My apologies to you all.  Clearly, I need more tea.

But no cooking today.

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Someone might be checking me out now.  Looking at my blog to find out more about me.  I’m not sure.

But that’s okay.  In fact, it’s great! I want you to know me!

However, if you are looking at my Blog and checking me out, know that I am SO much more than these words.

If you are reading, I hope you see this.  If you took a look and don’t come back? I’ll be so mad of not thinking of this sooner!

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It took me a while to figure this out. 

If you feel like something is wrong with your health, have a diagnosis where you need help because things are a bit unstable.  What should you ALWAYS do?

Track things! Get a calendar, mark things down like a journal and monitor every and all changes! It doesn’t matter how small.

There were so many variables that took me so long.  The largest being my head such a disaster.  Head injuries can, to whatever degree, turn you into a wreck.  I still have both retrograde and anterograde amnesia from one.

A few episodes happened when I was discharged, but I didn’t clue in to write down dates.  They also just resolved with time.  Not a lot of time either.  Maybe two hours at most, and they were hardly as intense as before.

Everyone was still so focussed on a stroke at first, waiting for me to get my MRI, see its results…  That was going to take a month or more

Recently, I had two other episodes. They were one day after the other.  I certainly need to journal or track that!

The second one wouldn’t resolve after five hours, and was almost as bad as the one that sent me to hospital originally in July.

I finally broke down and went to hospital as I just couldn’t stand it anymore.  Yes, I am a VERY stubborn patient.  Don’t be like me!

I hadn’t thrown up like the first time, but guess how the Paramedics found me? Hunched down down on my knees with my head hung over the the toilet bowl. 

They gave me this traveling vomit bag.  It wasn’t completely a bag though.  It had a cardboard “box” at the top.  It was shaped like a Chinese Food Take Away Carton.

No offense to my Asian readers, here.  I mean it.  However, I couldn’t hold back from making a joke to one Paramedic and say, “This is what they give you when you have too much Chinese Food and it makes you sick.”

I was taken to a different hospital. Now, to treat the symptoms and “make me more comfortable” even though I was dying in pain.  Are you kidding me? 

Although, I actually passed out.  Are you seriously kidding me?

IV Fluids.  Standard.  IV Toradol which is an anti-nauseant.  I’ve had it before and it’s made me feel nice and floaty, but never knocked me out! Are you curiously kidding me?

Some other thing strung up and pumped into me.  I can’t remember what it was so maybe that doped me.  Are you illegally killing me?

Finally some Steroid. It was shot in liquid form, into my mouth via a syringe.  Are you weirdly killing me?

It was for “Rebound Pain” over 72 hours.  Okay.  Now you are RIDICULOUSLY AND STUPIDLY KILLING ME!

This is the best hospital in our city.  I want to go there ALL the time.  It’s only that they didn’t know the history (now irrelevant) and how to treat me properly (now irrelevant.)

Although, I will be going back to an EYE CLINIC they have there.  Yes, Clinic.  Not just some Dr. Who Knows.  I think even a Neuro Opthamologist.  Awesome!

Does anyone out there remember my TASE? Typical Absence Status Epilepticus? If you don’t, you can search for the Horror Show on the rest of my Blog.

It was catamenial.  That means, to do with your Menstrual Cycle and even days surrounding it.  I was lucky enough to have ditto for Ovulation.

Well, now I’m having the same with migraines.  I’m on my period now and those two one day after another? That second one where I had to go back to hospital?

Nothing has cleared up yet.

With this now in mind, I can EASILY track all the others from dates of my cycles.

This is a disaster.  More than.  Sweetie GP has been on vacation for the month of August.  I have an appointment soon.  She’ll probably agree with me:

WE HAVE TO GET YOU TO YOUR NEW GYNECOLOGIST FOR THAT PARTIAL HYSTERECTOMY NOW!!!

No kidding.  I have to stop getting my period! Moreover, I won’t even bring my anemia and how bad that is into all of this.

Also, Non-Arsey Neuro is going to call me as he’s away for a bit now too.  Stupid Summer Vacations! *laughing*

I will be suffering for a long time.  None of this will be resolved anytime soon.

I have to try for some kind of stopgap.  My Triptans can’t handle this.  I’m going to ask him about Ergotamines.  They might be VERY good for this in terms of how they work.  The dose schedule, no contraindications or med interactions for me.

Another neat thing about some is they can ease menstrual flow.  But I don’t know if that would happen for me at too high a dose.

There is a specific Ergot derivative to do this actually! It’s called “Ergometrine.”  However, it’s not used to treat migraines

So, that’s that. 

I think this needs to be handled ASAP.  If these migraines are bad enough to give a stroke presentation, and they will continue to happen on a regular basis? What (else) might they be doing to my brain?

I already have so many comorbidities.  Right now I’m living in a perpetual state of a very significant TBI. One that already affects so much of my daily functioning. 

It also does bring out features of my other comorbidities now that I think of it.  Absolutely.

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“If it looks like a…if it quacks or whatever sound…if it…”

How many people out there have had experience(s) with strokes? Have even had one themselves? I’m finally getting around to writing about this.  Wraparound sunglasses that wraparound my glasses too!

Most convenient and necessary.  I’ve also had to really increase the View on babyMacAir.  The letters looked like ants on a page.

Also, not for Photophobia.  To me, that seems rather odd.

The sunglasses and a fabric eyeshade that allows virtually no light, are used for use and recovery of too much use! Sometimes I don’t, or won’t know how much I’ve used my eyes the day before.  I’ll only find out by the degree of headache I have?

I’m getting one now as I woke up well before sunset when I’d rather be still sleeping or fine with being up now.  Although I’d rather keep the post-TBI (and definitely mine!) out of this Post.

So I was at home watching TV (or it was on) and looking at something on my mobile.  I wasn’t doing anything special and WHAM! I was seeing so many versions of everything, it was like I couldn’t see.  Quadruple Vision?

NOTE: Before you go any further into seizure thinking, hang on for the rest I have to tell you.  Also, I have never even been close to having a photogenic seizure.  Also again, if you don’t know, strokes can happen instantly to anyone–babies to the elderly.

FIN.

I am probably one of the hugest Emetephobes on the planet. Emetephobia means fear of throwing up.  Mine came from my mother, who cared only about anything in the house becoming soiled.

Heaven forbid you have a sick child who might barf–on a kitchen floor that wasn’t even carpeted! So fear was instilled.  Now I have to become violently ill to throw up.  Extremely sick or something wrong.  Well, the latter implies the former.

Sorry.  (Possibly) Stroke Me can’t think very well right now.

Then, I felt it coming.  Oh, god.  Oh, GOD!!!

How many of us have had THAT experience? *laughing*

Trying to run to the bathroom when you just know you’re going to toss your cookies! No bowls, buckets.  

No cheeks either.  It has to remain in your stomach.  If it comes up to fill your cheeks? You’ll have an unbelievable geyser all over the room–and be thankful your mother wasn’t mine.

So, after Crazy Vision I started to sweat.  A lot.  But that calmed down when I got really weak and tried to avoid a geyser.  I made it to the bathroom.

The weakness was not bilateral.  But “Stroke Bilateral Weakness” is a bunch hooey! Depending upon what’s going on and where, you can be weak all over!

I didn’t know how weak I was, what side, all of me, but I do know it was too far to crawl back to my bed to call 911 (or 999 in certain countries.)  People, my living is pretty small.

Nonetheless, bathroom closest to hallway to knock on neighbour’s door.  Crawl across hallway, throw up again.  This time some blood in it.  Not occult, although a fair sized chunk of either blood or tissue that was tan-like in colour.  That is for any Professionals out there?

The red is just a tear somewhere? Or part of…  Occult is bad, although that is for other organs–not specifically my brain.  If it were, only an embolism would be capable of destroying things all over.  That said, I could or would be dead right now? This happened on July 21, 2005

Okay, on with the rest of the show.

My voice and speaking ability.  Total mess! The woman could hardly understand me to figure out to call 911.  The Paramedics couldn’t understand me because they asked if she lived in my place.  No. But she’s trying to find what they needed.

Mumbly, mumbly, mumbly! How many hours until I could speak again? I have no clue.  Also, post-TBI but have no memory of dealing with Doctor in ER.  Have the notes and I laughed out loud at how I was acting and what I was saying.

I couldn’t even tell him what brought me there! I was going on about prior medical problems that were totally irrelevant.  I clearly had no cognitive capacity to engage in conversation about anything! And again, what brought me there!

I had to wait for a bed on the medical floor.  I don’t know how long.

Oh, yes.  The worst of it all is I wanted to rip out everything from my eye sockets from the pain! I was in so much PAIN!!! Rip every piece of tissue out of those sockets until there are only black holes left!!!

This is getting pretty long.  I’ll save the hospital stuff.  I’m getting really tired too.  I need to rest.  All I do, but I finally have my MRI Scheduled! I hope they find something.

Not to sound whiny but it’s not pleasant.  Housebound, alone, feeling sick…yeah, okay.  Whatever.  A lot of others have it a lot worse and they’re really happy.  I should shut my yap!

Tell me what you think my readers.  I won’t tell you the number of other people that have told me what.

CODA: 20+ years of First Aid and CPR Training might have really helped me here.  If I didn’t know any better, I could have just slept it off, see how I feel in the morning.  How about you feel nothing because you’re dead.  Whether you had a stroke or not.

Everyone, if you EVER feel sick or off and you don’t know what it is. But something feels wrong.  Listen to your body and not your head!

And go straight to the ER.

FIN.


Okay.  I have had it UP TO HERE WITH MY GODDAM BLOODY FIBROIDS!!!

Oops.  “Bloody” was a pretty dumb word to write there, wasn’t it? Nonetheless…

I just got off the phone with Sweetie GP.  She needed to be updated on some things she’s not aware of.  Some new things, LIKE RIGHT NOW!!! *laughing* 

Also, something new to me that just ain’t no fun and ain’t no fair.

Everyone around here knows (or will read now) THIS STUPID BULLSHIT has to do with my Fibroids.

One thing that is not uncommon is for women to experience heavier periods.  Although, with my long history of anemia, I joke that I now have, “Period Anemia.”

This is actually not a joke.  AND NOT TODAY!!!

I HAVE BEDRIDDEN PERIOD ANEMIA!!! EXTREME CANE ALERT!!! SOMEONE FIND A NEUROSURGEON!!! STAT!!!

I had so much to do today.  So much I was capable of doing today.  One thing I needed to do today.

Now, we’re playing “Hide and Seek Period.”  I spot so heavily it’s like I’m on it.  Then, that stops.  Then, just wait and count to 100!

It would appear my Fibroids have quite a sense of humor.  WELL IT’S NOT FUNNY AT ALL BEING OUT IN PUBLIC WITH NO TAMPONS!!! RUN TO DRUGSTORE CASUALLY!!!

I cannot count the pairs of underwear and other clothes, that I have had to throw in the trash. 

So, my Fibroids seem to be stand-up comics AND extortionists!

I have THREE FUCKING PAGES OF NOTES FOR MY NEW GYNECOLOGIST!!!

And speaking of fucking? This is the latest and greatest. 

I get INCREDIBLE CRAMPS WHEN I HAVE AN ORGASM!!!

That’s what I referred to as, “…just ain’t no fun and just ain’t no fair.”

I think it’s pretty clear to say that’s an understatement larger than our entire Galaxy.  Or larger.

I won’t delve into the three pages of what my Fibroids are doing to me.  Which they should not be doing to me.  Or any other woman.  In our Galaxy or beyond.

However, this is the end of the line. 

I REFUSE TO LIVE MY LIFE WITHOUT BEING ABLE TO HAVE ORGASMS!!! *not laughing*

Thank you for reading. Do you feel ill now?


Sorry.  Not a very catchy title.  Blame the migraine (and Maxalt – my triptan of choice.)  I’m actually turning my mobile at a weird angle for the photophobia.

OMG.  What am I doing??? I want to write something because I’m ticked off, but I’m waiting for the Migraine Murderous Reaper to come knocking on my door–not some courier with a belated birthday gift.

I’ll get back to this.  Post-Postdrome.

Sorry, but thanks?


I kept holding my little AA Chip I got today after my first Meeting.  No.  I kept holding it ALL DAY.

And crying.  And crying.  And crying.  And crying.

And smoking.  And smoking.  And smoking.  And smoking.

We’ll deal with that addiction later.  Although, Sweetie GP has a Clinic to help with that. 

Holy, crap! Multiple Doctors working in the same office and they have Clinics to help you with everything and they’re all in the same office.

The building is also a high rise with other occupants.  Quite.

This is going to be rambly as all get out.  Or get up? Ouch.

I took my meds pretty early hoping to pass out like a bomb.  Huh? Passing out wouldn’t sound like a bomb would it? I don’t know.  I pass out quietly.

Slow.  No? I broke my role of only two Valium a day to three to kick my sleep meds in the arse if they don’t kick in after a long time.

It’s okay that I do this though, kids.  No abuse of my meds.  All my Doctors know I do this.

Finally! But very fitful.  Then a few hours later? 0300hrs? Oh, man!

Had to go to the bathroom but MIGRAINE!!! Gulped my Maxalt but after that, I knew that going back to sleep would be impossible.

I’m so gone.  I don’t think I can write anymore.  Proofing this will be impossible.  I think you guys will get it though.

When my Insomnia gets beyond control, I find I can usually (or possibly?) get some winks before sunrise.  Maybe I’ll try that.


Fuck my ankle.  Fuck my sanity. 

When I walked in the door, I almost fell, shaking and crying into a tiny foetal position on the floor–after one person said, “Hello.” 

Fuck my Asperger’s while I’m hand flapping, and head twisting, pulling at my clothes etc. in the meeting. 

I did say I had Asperger’s to everyone.

*pauses for cigarette to continue de-freaking while stomach feels like an Olympic Gymnast*

I was new and wanted to come back.  Also, literally had my last drink(s) yesterday so I received my “24 Hours” Chip.

If you don’t know, they give them out to Members for various lengths of sobriety.  So, hold my lucky chip in my hand and no more booze!

Uh, I think it’ll be a bit harder than that.

I have to somehow relax.  I’m still merrily going through Detox and Withdrawal at the moment as well. 

That’s the tough part.  Or is for me.  Being a Functional Alcoholic.  Well, it’s becoming a lot more tough for me now.  I’ll bet my chip on that.

Valium can be used for Detox and Withdrawal so one of those now! Then something on TV to get me settled and all of this out of my head.  For now.